I was diagnosed in 1998 with stage 2, thankfully, I have been so mindful, as a result I haven’t reach stage 4 and I have been on Tolvaptan for 3 years now. I’ve been undercare of 3 consultants who have been so brilliantly supportive.
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Hello Maggie, and welcome.
Sorry to hear you have had such a bad experience with your Dr. Is there any way you could ask to see someone different in future? Maybe the one who picked up on your kidney function?
As Beanbag was saying gp surgeries are having to cover such wide areas filled with thousands of new houses. (At least where i am) Patients have become a number. Gone are the days when your gp know your whole family and there children went to the same school as yours.
Sorry, rant over. Back to you. It is possible that you can lead a fairly normal life bobbing around the 30’s I know things for you are a bit different from myself as the Diabetes complicates things more. Keeping hydrated and cutting potassium and salt can make a big difference in stabilising kidney function.
Good luck and do keep us updated.
Maria
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Hi All
I’m Mandy and I am at stage 3b at the moment. How long did it take You to get a confirmation of the cause of your CKD? I’ve had this for 5 years now and all blood tests come back negative for anything other than CKD, biopsy was also unknown cause.
Thanks for any replies Mandy
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Hi Mandy!
Thank you for sharing and reaching out to Kidney Community in search for more information. I’ll pop below some links to current threads and conversations around CKD, stage 3b and more:
- Stage 3 chronic kidney disease
- What stage were you diagnosed at?
- My hubby has been diagnosed stage 3b
I will also categorise your post in hope that it helps others search for it 
Take care,
Brogan
It’s great that you are volunteering for a trial. I am a researcher for my day job (not anything to do with kidneys!) and I’m always so grateful when people volunteer. It really makes a difference.
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Just had the results of my last blood test and egfr has dropped again to 33, therefore have another blood test in a week or so. I am 68,vegetarian, slim and exercise. Is there anything further I can do to reduce creatinine levels within a vegetarian diet. Or is this a red herring and it’s in fact my natural kidney decline. Any other veggies on this forum that are similar. Thank you for listening to my rant.
I am a vegetarian and have been for 54 years. My EGFr has recently gone from 21 to 23 so it can go in either direction. The only thing I can suggest is to keep hydrated, 1 1/2 litres a day, or more crudely 500 ml more in than comes out. Best wishes B
I don’t know what stage I am. According to Dr I was 72 in 24 and I then had a bi-lateral pulmonary embolism ( shouldn’t really be here now) but hey ho still am. Reading then went down to 67 but new reading in 26 went down to 47 but is now 57.
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Hi Paddy, quite a yoyo , But, as you say you are still here which is the main thing. From where I sit , 57 is a great result. Best wishes B
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Well done keep up what you doing good 
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Hi there im also new here. When reading your post you said you had Bergers disease. My mum had this and it effected her legs. I didnt realise it effects other organs. Hope you are keeping well. X
Hi new here. I have Multiple Sclerosis diagnosed 2006. As part of a trail i was on i had scans. It showed a cyst on my kidney i was told they could drain it but will most problely grow back and so i left it alone. Over the years ms team kept close eye on me with blood tests checking liver and kidney and white cell count. Making sure the medications where not causing problems. when my white cells dropped so was immune supressent and had been immune suppresant right through covid so i was given the covid injections and had to be very careful.
I found an article about the Disease modifying drugs used for MS and the risk if you have JCV virus and immune supressent. So i asked my consultant to test me for JCV id never in all these years been tested. I was shocked that in fact i did have it. Because i was JCV positive immune suppresent i was at risk of developing PML. So they removed me off my meds. Staight away that was 2024 jan. If i hadnt asked i wouldnt of been tested. Consultant my new one said i bet you wished you hadnt asked for test. Omg so now no protection against MS. I relapsed 8 months later.
Now ive told you this because if i dont question things i dont find out. So last few months the gp has been taking my kidney function. A new young dr saw me 2 weeks ago as i wanted a fit test as blood on paper when wiping. She examined me and fast forward having a colonoscope as she has written on form she felt a rectal mass. She told me a polyp. Im on the 2 week journey.
She gp then proceeded to look at my bloods and said i need to check a few things bit im thinking you need a ultrasound on your kidneys as function is 53 %. Im thnking ok and sent me for more bloods. I looked up my blood test and im in the range of 30 to 60 which is stage 3a so when she phoned to check im going for colonoscopy i said about my results and said have i CKD 3a and she said oh yes you do. Omg asked what can i do she said reduce salt excercise and text me later and said can i give her a urine test and bloods in a month.
Now i found this site because fb listens and started putting up CKD things on my page.omg so ive joined so i can be more informed of whats happening to my kidneys and how i can help myself as gp wouldnt of tokd me if i hadnt looked it up. If you got to the end thanks for reading.
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Most standard cases of Stage 3 Chronic Kidney Disease (CKD) are managed within primary care by general practitioners (GPs) and practice nurses, rather than being automatically referred to a hospital consultant.
Although my mother was with a consultant stage 1-5 hospice care
Best wishes with your results!