Stage 3. The Paramedic found it in my notes while looking up my meds for another reason
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Hello, Another case of finding out via the back door. Suggest you contact the originator of the entry and find out what is going on. This is really appalling treatment and you deserve better. There appears to be a growing trend within the NHS to not give a damn. Best wishes B
Good morning CRJ, I have blood tests every 6mths. I also keep an eye myself by doing urine dip tests at home if I feel the need.
How are you keeping?
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Hello Beanbag. Thankyou for your reply. I hope you get the news you are hoping for at your appointment. What is the Easi-Kidney ? It sounds like a device?
Please let us know how you get on.
Hi, I had a little scroll back to find your story. I’m sorry to hear you haven’t had the support or information you needed from the Doctors.
I’m no expert and can only go on my own experience, but feel free to reach out to me if you need.
Try distracting yourself while you wait for the results of your tests. No point in worrying before you know what to worry about!!
And bare in mind its possible to stay stable at stage 3 and lead a normal life. Im proof of that. Been married, had 3 children, divorced and built myself back up again. All with sad Kidneys.
Best of luck.
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Hello, Easi-Kidney is a medical trial that is running for 5 years. It began last year and joining was by invitation. I take Empagliflozin 10 mg and Kidney B1 690517, now called Aldosterone or a blind, I do not know which. The object of the trial is to determine the efficacy of this combination on benefiting the kidneys and prolonging their useful life and possibly replacing dialysisi n the long term. So far my sugar levels have dropped because an effect of Empagliflozin is to rid the body of some of the excess sugars that hamper Type 2 diabetics. I have been a diet controlled type 2 diabetic for 15 years so this is a benefit to me as well. It was strange that my local teaching hospital was undersubscribed on the trial with many people being wary and not interested. Being 80 , with stage 4 CKD , a five year trial might be a little optimistic, but I decided to go for it. Nothing ventured etc. Best wishes B
I was told it was stage 3 but not whether it was a or b. I’m hoping to get an appointment next week and find out more. I wondered about testing my urine at home, should I be looking for protein and anything else?
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Very foamy urine is often a sigh of excessive protein in the system. Have look behind you when you next get up .
Best wishes B
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Thank you for responding. Ok my GP said yearly checks. But I might request 6 monthly. Im well thank you.. Just changing my diet and trying to exercise more. I have been told to drink 2L of water daily.
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