We are so happy you have joined us. This online forum is a safe and friendly space to support and connect with others who share some of the same experiences that you do. If you are new, or if you have been here a while but haven’t posted yet, let’s start by getting to know each other in this area. If you feel comfortable, you might want to share things like:
· What brings you to Kidney Community?
· Where are you on your journey?
· What kind of support are you hoping for?
There is never any pressure to share more than you want to.
To make a start, hit ‘reply’ down below.
We look forward to getting to know you all and supporting each other along the way.
Morning all. Tyke here. I’ve been on dialysis for 11 years and although I’m 83 years old try to keep as fit as I can at my age which helps me through 3 dialysis sessions a week.
Hello, I’m Lizzie. I was diagnosed with CKD about 18 months ago. I started at Stage 3b, but hove managed to stabilise (so far) at 3a. I intend to keep it there if at all possible. I’m 80 this year and am aiming for 100!
Hi, I am 83. Had radical nephrectomy 8 weeks ago and sepsis. I am finding recovey very slow because of balance problems. I am having to use a walker in the house. Has anyone else experienced this? Also the itching is very bad still.
Hello everyone. I’m Mary. I’m 81 tomorrow and struggling with CKD, kidney stones and caring for a frail elderly partner. I have referral appointments in March but have had no medical advice except don’t take anti- inflammatory meds. I found out that I had CKD by accident when a physio assessment included it in an assessment last June. I had to Google to find out what CKD was! I am trying to eat a kidney friendly diet and am hoping to get individual guidance soon.
It’s good to see positive posts from.others here - I’ll do my best to be positive too.
Hi everyone. My name is Henrik Jespersen and I am based in Leicestershire. I was diagnosed with IGA Nephropathy in early 2024. In February 2025 I suffered Renal Failure with eGFR of 5 and started Heamo Dialysis. I later switched to Peritoneal Dialysis, which I preferred. In October 2025 I was lucky to receive a Kidney from my youngest Son. I realise I have been very lucky. I am now doing well and have become a Community Ambassador for Kidney Research UK.
Good morning all, my name is Aysha I am here to support my brother who was diagnosed with IgA nephropathy 2 years ago and hope to be his donor in the next year. I am 48 and he is 54. I have a bit of weight to lose before they consider me and hoping that my brother stays stable until then. Our situation is a little complicated because of our heritage (Middle Eastern mix) as very little donors would be a match from other backgrounds. Wishing you all a healthy year.
Hi and thank you for making me part of the kidney family My name is Lynn I am at Stage 3 of CKD. I had a kidney removed in 1987 due to absence. I have multiple allergies to Antibiotics.
Hi,I’m Debbie aged 56 from Penwortham near Preston. I was diagnosed with APKD in my 20’s. my function deteriorated over the years until i was put on the transplant list with an Egfr of 11 in January 2014. Luckily i had my transplant from my angel donor in December 2014 having not needed any form of Dialysis. After still suffering may UTI’s and pain from the growing cysts i had both my original kidneys removed in 2016 I am now over 11 years post transplant with a stable egfr of 32ish and creatinine levels of approx 150, and living a life i didnt think i would be able to. I have always been terrified of dialysis ( i have a fear of needles) ironic, seeing as how many blood tests i have to go through! But i really dont know if i ill be able to go through with it if and when the time comes. Does anybody else feel like this?
I also have IGA Nephropathy and been on peritoneal dialysis for the last three years. Congratulations on receiving a new kidney from your son. Hope recovering is/going well. Good luck on your journey.
Welcome Saffy. We have an area focused on rare kidney disease that you might find useful to use to connect with others in a similar situation, as more users join. I’m sure the difficulty of keeping fit while suffering from fatigue is something that others experience. Does anyone have any suggestions here?
Hi, im sarah i have sle lupus and lupus nurphritis stage 5 now out the blue kidney failure declined fast alongside other major issues ended up in a bad way, ICU having emergency dialysis. So gone from been aware of kidney disease and thinking i was doing ok on stage 4 to a sudden deteriatation and having to accept my new situation. Have joined this forum as iam totally clueless on this subject and feel like a fish out of water and scared about the future mainly how iam going to get to hospital and home all the time with all my other issues i already have due to lupus. Hoping to gain clarity and make new friends and also help others if i can.
I am here to support my brother who was diagnosed with IgA nephropathy 2 years ago and hope to be his donor in the next year. I am 48 and he is 54. I have a bit of weight to lose before they consider me and hoping that my brother stays stable until then. Our situation is a little complicated because of our heritage (Middle Eastern mix) as very little donors would be a match from other backgrounds. Wishing you all a healthy year.
My name is Lynn I am at Stage 3 of CKD. I had a kidney removed in 1987 due to absence. I have multiple allergies to Antibiotics.