How is everyone finding this amazing new Kidney community?

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I’m loving this new kidney community :purple_heart: I just thought I would ask how everyone else is finding it ?

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I love it too. It’s so reassuring to hear other ckd experiences about the symptoms, how people manage their daily lives and how they find support from others. Personally speaking on my worst days I feel so sick that I think I will not have another good day but when I read posts from others who are so kind and sympathetic it lifts my spirits and gives me the strength to say’ tomorrow is another day’ and look forward. There is also a lot of useful information that ckd patients pass on about medication or diet etc which I have found helpful. Thank you to all the people who post, you never know sometimes how you have helped others but believe me you have. :blush:

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I consider myself fortunate in that I have yet to need dialysis. Having said that , the general trials and difficulties most of us, (the CKD suffers), are generally of an irritating kind. Fatigue, itching, broken and irregular sleep patterns , irritability and the inability to do the things we always have like spending the day in the garden. I fully appreciate that many have complications that probably put sole CKD in the shade, and I cannot imagine their situations, so my heart goes out to them. I have found this forum to be a great way to both empathise and gain some insight into what may be in the future. On those ‘really feeling grim’ days it is a mental crutch that I find myself needing more frequently these days, so thanks to you all. Best wishes B

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Loving the support also reads from all

Be kind to yourself always journey through kidney disease somewhat frightening at times

Forum helps ease minds answers questions which all go though at some stage

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I think its great. It is good for people early on in their journey (under 5 years) and those who have also been on the journey for a while.

As with any new diagnosis or progression it fuels anxiety and worries. This group helps ease the anxiety in those with kidney disease, builds a community that understands, provides a platform to vent and demonstrates that you don’t have to go through this alone.

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I’m at stage 4 now so it’s been really interesting and helpful to hear what others have to say about their experiences. I’m learning more about ckd and the kidney journey from this community all the time… probably more than I am from my consultant, who I only see every four months. So thanks to all who post, please know that it really is worthwhile :blush:

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