Hi Sara I’m Christine. I also have lupus but I was diagnosed at the age of 15 and I’m now 64. My kidney disease has progressed slowly. I am now stage 4/5 snd on the transplant list but I dont need dialysis yet fortunately. I think i have been fairly lucky that my progress has been slow although I have had plenty of challenges with Lupus over the years.
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Hi Alyson, welcome to the Kidney community. Thank you for feeling comfortable enough to share your story. We hope you can navigate your way through the platform to find some support for the specific things you mentioned like dialysis and transplantation - there’s lots of chat here about everything else too so feel free to have a browse
Hi Helen, welcome! Really glad you’re getting something out the community already and hopefully getting some support and possible guidance reading other people’s posts and replies. Sounds like you have a lot on your plate at the moment, you aren’t alone in this. Please feel free to browse all the categories for some specific topics which might help you on your journey
Hello T.McCarry, I’m so sorry to hear about your mother. You’re definitely in the right place to open up and share how you’re feeling, this is a safe space. If you’ve not already found it, there is a category called ‘caring for people’, which you might find useful. There may be others going through what you’re going through who can be a support to you
Thank you for all your supportive comments to other members 
your advice and kind words will mean a lot to people
Hello and welcome You’re definitely in the right place for some support and guidance from others in very similar positions or those who are at a different stage, but have been right where you are. You might find it useful to browse through the categories section - chats about diet and exercise might be useful to help you understand your body a little more and to take some control over your kidney health in this way
Hi Beccy Thanks. Support is a 2 way street. What does around , comes around Best Wishes B
Exactly, enjoy the rest of your evening and thank you again for being so supportive. We’ve noticed lots of your lovely comments!
Hi, My name is Ami. I’m 47 and currently I am at stage 3b of CKD. I have been informed I had CKD from recent blood tests however found out this was triggered years ago but I wasn’t offered support or advice. As I am new to CKD, I joined this forum to find out more about what I should be doing to keep as healthy as I can as I am single parent to 5 year old, I would like to find answers to questions I have and learn from those who know more about this topic than I do.
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I’m sure you’ll be able to get answers you need from some of the members, Ami. I have no knowledge of CKD - perhaps I should do some research myself lol.
Maureen
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Hi I was diagnosed in December 2025 at stage 3 and just told to enjoy myself. Is that good or bad I’m 70
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Hi Tina
I hope you were given a bit more information than that. If you weren’t advised to change your diet or to take medication I’d say you’re doing okay at present. Presumably you will be monitored from now on though. There are lots of people in the same situation so hopefully they’ll be able to answer your questions. Welcome to the forum!
Maureen
Told nothing but that. Has anyone any advice about what I’m supposed to be eating . I only drink water and cammemoile tea because I also have Barretts oesophagus with bad acid reflux which I’ve had tests for and now seeing a surgeon in April. Told nothing else so if anyone could help me that would be great.
Than youMaureen I have other things going on but not many get to 70 without things wearing out
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Nothing! What do I need to know
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I’m not familiar with CKD as my husband lost both his kidneys to cancer, not CKD. I’m sorry I can’t be more help.
That’s very true! Someone will come along who can help. I do know that you should watch out for food that’s high in potassium and phosphates. 
Hi everyone, I’m Sara and have had ckd for over 20 years. I am currently at late Stage 4 with an EGFR of 17 so at pre dialysis stage and have had lots of advice and info from my kidney clinic and pre dialysis nurse. I’ve lived with ckd for a long time and by taking my meds and eating low potassium, low /no salt meals with as little processed food as possible I’ve been able to enjoy a good life. I’m now 69 and at this stage of my ckd I’m beginning to struggle a lot more with nausea, extreme fatigue and dizziness. However, I have a wonderful husband who’s been by my side through everything and wonderful family and friends so I would say I’m very lucky. It’s nice to be here among all of you and together we can hopefully help and support each other.
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Hello Sara
Good to have you on board! You have plenty of experience with CKD. There are some here who are only starting their journey and who have questions so maybe you can answer their questions. You have lots of support from family and friends, which is lovely to see. 
Maureen
My name is Amanda I have been diagnosed with Chronic Kidney Disease and I am awaiting a kidney Biopsy on 15 April and a bladder scan I suffer with anxiety and really worried about what will happen xxxx
I have seen the consultant twice who as said I have protein leaking and blood in my urine and she suspects I have IGA Nephropathy
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