Hello Amanda. As f as I know IGA Nephropathy is a slow advancing condition , that can in some cases with the right dietary controls lead to remission. Your consultant will advise you upon the biopsy results. Try and keep your spirits up and do not worry to much. That will not help. I have had protein leaking into my urine for years , which I understand is quite common in CKD cases. Best Wishes B
Hi Ami, welcome to the kidney community. If you’ve not had a browse already, have a look at the topics section and there may be some chats going that resonate with you. There is a category around diet and exercise which you might find interesting but there’s also conversations happening around living with CKD and the struggles with being a parent too. I hope you find what you’re looking for ![]()
Hi im michelle and have stage 3 ckd. My gp has said i dont need any meds for stage 3 but i am always so tired. Any suggestions what i can do?
Hello, try to keep hydrated and gert as much gentle exercise as you can. Keep salt and potassium intake down. Best Wishes B
Hi Jon, just wanted to say I’m so sorry for your loss. You’re definitely not a fraud, you probably know as much as us patients with being your wife’s carer. Your experiences and knowledge will definitely support other carers and patients alike. My husband cares for me and helps me so much (I’m Stage 4) so without wonderful partners and friends where would we all be. God Bless.
Hi Chris. Fingers crossed here for a positive outcome from your hubby’s surgery. My hubby has had both kidneys removed due to cancer, the first in 2000 and the second in 2019. The second op was keyhole surgery. Between the surgeries, hubby lived a ‘normal’ life with no further treatment necessary. He was, however, monitored every year. Life is less normal now, with dialysis sessions 4 times a week, but he’s fit and healthy apart from having no kidneys. I hope this gives you some reassurance. ![]()
Maureen
Hi Jon
What a hard journey you and your wife had. I’m glad she had you helping out so much - I’m sure she must have appreciated your love and care. I hope you’re keeping yourself busy now. ![]()
Maureen
Hi, I’m Lisa, 57 from West Yorkshire. I was first diagnosed when I was 34 with adult PCKD. I started dialysis in 2020 and was lucky enough through the COVID madness to receive a transplant the following year. Five years and still going strong. It’s been a long hard ride, but I’m so grateful to still be here ![]()
Hi I’m Mike
I’ve had CKD for 23 years.
I received a transplant in 2012, but the cause of my CKD reappeared in the new kidney. I’m now at stage 3b/4.
I’m a big advocate for Patient Voice and patient-centred care.
I look forward to discussing “all matters kidney” with you
Hello Mike, Look forward to talking with you. Best wishes B
Welcome to Kidney Community @Just_lisa_26. I hope you find a great place to meet others who have been through similar things to you. Thanks for getting involved.
Hi Mike. Welcome to our new community. Good to hear that you feel strongly about patient involvement in health care. If you’re not already linked in, we have lots going on at Kidney Research UK to ensure that all we do is guided by the views and needs of those we exist to support, so drop us as message at kidneycommunity@kidneyresearchuk.org if you would like to know more. Good to have you involved.
Hi I’m 56 and have had ckd for 16 yrs I’m at stage 4 now with it effecting my thyroid(secondary hyoerparathyroidusm).I’ve had over 30 operations to keep my kidneys working removing many large kidney stones too big to pass. I try to get out every day as I have small grandchildren but pain in my legs can get bad but I’m glad I m not on my own and have other people who understand me.
How is this different to our Facebook pages.
Hey everyone, Gemma here. I’ve been on dialysis 13 years now, 12 at home using the NX stage machine. Best decision I ever made.
Hello all, I was diagnosed with kidney cancer in 2020 at the start of lockdown and had a nephrectomy six weeks later.
Hello Kidney people
. My name is Craig, I’m 53 and I have stage 4 kidney disease which has been pretty stable for a while. I was diagnosed when I was 35. Would be great to see how others manage their CKD and get some tips.
Hi everyone. My name is Hema and I’m currently on peritoneal dialysis. I’m 37 and have been on dialysis for 3 years. I went into kidney failure and no one able to tell me why. I had two biopsies which suggested kidney was going recover however within a year my kidney continued to deteriorate and well here I am. I’m also trying to share my story on social media. I am eagerly waiting for a transplant. I still currently work full time as a senior nurse. Nice to meet you all and happy to connect with people and support each other ![]()
Hi
I’m Diane. I have CKD (which I only discovered because I went for my regular blood donation and my sample was refused.
I’m not sure which stage (but I will now ask the doctor when I next have contact.)
Currently trying to manage it with diet and statins.