Hi this is manjit 68years old I have had liver transplant 12 years ago n I have ckd since then but i was not under any nephrologist until a few years ago after my liver doctor insisted on getting a doc to see me recently my egfr has been not too great but with my diet it’s getting little better all always look out is for a good diet n plan so I don’t have to have dialysis thanks 
2 Likes
Hello Everyone,
I’m Ann, I’m 68 & received a text message from my GP in June 2024 informing me I had CKD and a link to NHS guidelines. Needless to say this came as a shock. I called my GP for a consultation & was told I’d had CKD for 4 years but when I asked why I hadn’t been told before, he had no answer! He just advised me to drink at least 1.5lts water per day, cut down on salt, processed food, limit red meat & dairy.
I am currently stage 3a (was initially 3b) and have found online support groups more informative & helpful than my GP.
My eGFR is currently 48, all my other readings are within normal limits & risk of kidney failure >0.97%. I try to keep fit, my BMI & blood pressure are normal, so I try not to stress too much about having CKD as I have a good friend whose youngest daughter is waiting to go back on the transplant list.
I am flying home from Florida today after spending 5 weeks with my daughter who gave birth to my 2nd grandson at the end of January. It will be interesting to see what my next blood results are as the food here is awful!
2 Likes
Welcome @Pritam. Great to have you as part of our online community. You might find it useful to explore and post in the ‘Diet’ category. We also have some diet advice on our website here. Other people in the community have also already posted some great diet tips and advice. Thanks for getting involved.
Welcome to Kidney Community @ElegantLady. Good to hear that you have already found online support groups to be useful. I hope this one is too. Thanks for joining.
1 Like
Hi everyone, my name is Alyson. I have had PKD for many many years, inherited from my late mam. I am currently at stage 4 with eFGr of 19. I have had a lots of issues over the last 12 months or so, itching, pain in stomach, breathlessness. I have also been having various tests recently as they are talking about transplant instead of dialysis in the next year or so, they also mentioned a live donor and about asking close family members but my parents have both passed away and I don’t have any other brothers or sisters, it’s all scary stuff at the moment.
1 Like
Hello , I sympathise, as I am stage 4 with EGFr 21 . I have some stomach and back pain with a bad sleep pattern. I was prescribed ‘EURAX cream with CROTAMITON’ . This sorted out the itching. It is available on line without a prescription and may also be in your local chemist for under £10. Might be worth a try. Best wishes B
Hello, When I was in the USA all the food seemed to be processed or have additives that we do not use here. After a 2 month stay I was thoroughly sick of the place and pleased to come home. Grateful that my posting was 2 months and not the possible 2 years. I try to be sensible with my diet , but advise, even from professionals can often be contradictory. Common sense probably prevails with me, a mixture of restricting potassium intake, but also, still eating the things that I like but in smaller quantities. Boredom is also a bad thing with consequences . Best Wishes B
Hi B,
I do try to eat as much fresh food as possible when I am in the US but it’s so expensive!
Thankfully my daughter doesn’t rely on fast food!
I’m looking forward to ‘proper food’ 
Best wishes, A
1 Like
Hi everyone,
I’m 45 years old and currently at stage 3a CKD. This developed after a rare blood disease left me critically ill 20 years ago — I was on a ventilator for over four months and had to go into a rehabilitation unit to learn how to walk and talk again.
As a result of everything my body went through, I ended up with chronic kidney disease. If I’m honest, I’ve never really educated myself on what that truly means. Recently, I asked my GP to refer me back to get updated information and advice, and that’s what brings me here.
I’m hoping to learn more and understand what this stage means for me going forward.
1 Like
Hello, Sounds like you have really had a tough time.Stage 3a could be a lot worse, but then you are a relatively young man. Keep your Potassium well under control by limiting high content foods like tomatoes, bananas, beetroot and nuts. High potassium can cause heart problems. Limit your salt intake and be sparing with dairy . Drink quite a bit, 1/1.5 litres of water daily and keep well hydrated.A lot of dietary advise is on-line , but do not believe all you read as some is contradictory. Are under the Nephrology department at your local hospital? You have come to the right place. Welcolme and make full use of it. Best wishes B
Hi Everyone
Daughter of a much loved mothers who’s kidneys have been deteriorating over past few years. Transplant not an option or kidney dialysis has sadly not worked due to deterioration witj heart. Devastating is an under statement.
3 Likes
Hi you can call me Manjit Thank you very much for accepting me.
1 Like
Hello. This sounds awful. Is there any course of action being put forward by the specialists?How old is your mum ? I really do not know what to say, other than to send your Mum our best wishes. B
Hello Manjit, Welcome . What is your situation and how can we help? Best wishes B
Hello, How did your appointment regarding the dialysis go. Did you get the APD ? Best wishes B
Hi T. I can sympathise with you, though it’s my husband who’s been through the mill. It’s hard to accept that the options are becoming fewer as time goes on. This is just the place where you can vent your concerns and frustration! Don’t forget to look after yourself. x
Maureen
1 Like
Hi I’m Helen, 51 and just been diagnosed with CKD, it’s all a bit of a shock and I don’t really know what I am supposed to be doing. Seen consultant once and will need to go back and maybe have a biopsy. I am at stage 1 as GFR normal but my urine protein is very high and also have blood in urine. I have started on the meds to slow progression hopefully. A lot of your posts are all so positive, an inspiration! I have an 8 year old and work part time, he has additional needs and so I hope to be around for a long while to come. I have hypertension (medicated) and am obese. Trying to lose weight but very hard, feel like I have tried every diet going. Has anyone tried mounjaro, can you do this with CKD? I don’t meet the criteria for GP prescription so would have to go private. Also wondered about intermittent fasting but unsure if this is a no no with CKD? Also going through meno at present so some challenges there too.
Great to have found this group 
1 Like
Hi. They did more blood tests, so im waiting for them to book me in for inserting the pd catheter. Thanks for asking. My eGfr keeps dropping so quick , that’s what scares me. I started having symptoms few days ago, swelling in parts of my legs but other days no swelling.
1 Like
I’m glad they’re doing something about it! Hopefully, everything goes smoothly for you. x
Maureen
1 Like
Hello, Can you equate your legs swelling in any way with your liquid intake? My father in law had swelling legs many years ago and it was finally found to be water retention. Best wishes B