→ Thank you! 
Hello. I was born 77 years ago at 6 months I weighed 1lB I only have one kidney which sits at the front on the right side next to my gallbladder. I was also born with Heart disease. I am Addenbrooks Hospital Miracle Baby.
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Hello, wee miracle and congratulations for defying all the odds! 
Welcome to Kidney Community @Deborah1950. Hope you find it useful connecting with others here.
Hello Deborah, Well done for getting this far, Just keep on going , Best wishes B
Hello my late father told me. That I looked like a wrinkled prune. I fitted in his hand with room to spare. Oh,and I was born with a lot of,which never fell out.my mum had terrible indigestion right through her pregnancy.
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To be fair, I think most newborns look like wrinkled prunes - unless they’re born by c-section! You were born a fighter, Deborah, which is the main thing. 
Hello, I had a kidney removed because of a large benign growth last year. I have symptoms which make me concerned about the remaining kidney. My GP has ordered various tests, and I’m waiting for my Urology appointment 2 months away. Meanwhile I want to make my diet kidney-friendly, but I’m finding it so difficult because from my symptoms I suspect I need to avoid high oxalates, and I guess salt, potassium and phosphates. My GP says he cannot advise on diet and I’m on an 18wk waiting list for an appointment with a dietician. I also have a thyroid goitre which I’m not sure means I should have food with iodine or not. I use a water filter which filters out minerals along with the harmful stuff and I’m not sure if I’m doing the right thing by taking supplements to make up for this. By the time I’ve eliminated all the foods to avoid, I’m stuck for protein foods (no dairy, meat, most nuts, pluses), but I do allow myself to have chicken, turkey, chickpeas, black/eyed peas, pumpkin/sunflower seeds. I’d be interested to hear from anyone who has found a nutritionist who specialises in kidney diets and if it was worthwhile?
Reading some of your journeys, I am full of admiration. I’m sure this community will be valuable for me. Thank you.
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Welcome to Kidney Community @Cece. Thanks for sharing your story. You might find it useful to explore and post in the ‘Diet’ category. We also have some diet advice on our website here. And, as you say, I’m sure the wider community will be really valuable too in providing some great diet tips and advice. Thanks for getting involved.
Hello Cecelia, I had the same operation and result as you in 2018. I must admit that although cutting out high potassium foods like Tomatoes, Bananas and beetroot and nuts, I am somewhat liberal with the others. My potassium level remains ok , as do the other readings. I currently have an EGFr of 21 and my nephrologist says that most foods are ok if taken sensibly and in smallish portions. I eat pulses and potatoes, but these are soaked in water for about 1 hour, then the water discarded ,parboiled and the water discarded and then cooked.It seems that this method removes most of the potassium. I use full fat milk in tea as the amount is tiny. Diet sheets are available on line , some are contradictory as was the diet sheet from the hospital. I think that ,in my case, my diet is ok as life has to have some benefits. Too some extent age is also a factor, but one we cannot change.Good luck and Best wishes B
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My hubby started off following the strict guidelines of the diet sheets he was given but over the years we have found, as you have @Beanbag, that he can have a treat occasionally. He’s permitted one cup of coffee per day and now uses diluted single cream rather than milk in that, though he still has milk in his tea. Years ago, we had a call from the nurse to say his potassium levels were low and to eat a banana!!! 
We were also originally told to steep the potatoes for 4 hours and rinse well before cooking then a couple of years ago, they said it wasn’t necessary so long as they’re peeled. All in all, his diet is fairly varied.
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Thank you for your comment Beanbag. I’m glad you’re doing so well
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Hello my name is Christine , I’m 64yrs old, I have stage 3b Kidney Disease. I found this out last year. I’m struggling with fatigue amongst other things , I’m hoping to get and give strength and support also feel supported.
I
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Hi Everyone.
I’m new to this group as of this evening when I saw an invite.
I’m Sue and aged 70.
I have stage 4 genetic form of CKD which I had been unaware of as do not know of any family history of this.
I had a subarachnoid brain haemorrhage in 2015. Apparently this can be related to CKD.
I wonder if anyone else has had a similar experience?
My Son immediately wanted to be a donor. Unfortunately we are not a blood match but are going for pairing with another couple.
My eGFR is now 12 and we have had tests for transplant. Plan B is home dialysis. Speaking to my team soon.
It feels good to be a part of this group.
Take care everyone.
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Hello Sue. Nice that you sound so upbeat. I have found this group quite therapeutic . It is amazing how people with difficult symptoms stay bright and cheerful and just continue to get on with their lives. I hope Plan A works for you . Good luck. Best wishes B
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Just found out today I’m 3b,and I’m scared about the future.
Hi @Suki64. Welcome to our new online community. Hope that your expectations are met in this space to both give and get support from others facing similar circumstances. Great to have you with us.
Welcome to Kidney Community @Sue.j. Thanks for sharing your story. I hope you make some great connections with others who have experienced similar things. Good to hear that invites are being sent. If you (or any other users) want to invite others to the forum you can do so using the ‘invite’ link in the left hand column. Thanks for joining us.
Hi @tb2532. Thanks for joining Kidney Community. Sorry to hear that you’ve just found out that you’re 3b. I hope you find it supportive to connect with others here. You might find it useful to explore and post in the ‘recently diagnosed’ category and if you’re looking for more information then you might find these links useful on the ‘kidney disease information’ page. I hope this community forum provides some reassurance for you.
Hopefully the health professionals will be able to alleviate your concerns. I’m sure you’ll find a lot of support on this forum. It’s the not knowing what to expect that’s the worst, I think!
Maureen
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