Thanks for sharing your story @Aura. Sorry to hear about all the things you’re having to deal with right now. I hope you find this a useful and supportive space to connect with others. Thanks for joining the community.
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Welcome to Kidney Community @MattMarsh. Good to hear that things are working out well for you following your transplant. And interesting to hear that high blood pressure is the reason you were first diagnosed as we have just started the pilot phase of a new volunteering role here at Kidney Research UK that is looking at taking people’s blood pressure in the community to help facilitate early diagnosis and raise awareness. Good to have you involved.
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Welcome to our new online community @Laura1. If you would like to connect with others who are currently on home dialysis you could explore this area here. Great to have you involved.
Thank you for your kind words I’m glad ive found other people dealing with the same or worse.
I was diagnosed 2 years ago when I had a urine infection, been having them since I was young,was at stage 3a, had an ultrasound and was told I have only my right kidney. Don’t know if it was from birth or if it was later. Now stage 3b
I have stage 3a kidney disease. I only found out in 2022 when I read a referral letter my g.p. gave to me for a referral to a gastroenterologist for another health condition. At previous well woman check ups I was only told to make sure I drank plenty of water, which I have always done. No discussion no explanations. I have recently seen my g.p. about the condition at my request because my test results number had gone down to 49. He was not to concerned stating that this is something that happens with ageing, I am 72. I am concerned and I am going to speak with kidney care for some reassurance.
Hello, I do not think that you have too much to worry about. I am 80 and at 21. Keep drinking and avoid too much salt and potassium foods. I think you will be fine. Try not too worry, I would love to have your readings. Best wishes B
Hello B, thank you for your kind reply. As requested the following are my readings for the past year.
Nov 24 56
June25 60
July 25 63
Nov 25 57
Jan 26 49
Kindest Regards
J
Looks pretty good to me. The usual ups and downs. Look after yourselfand you will have years and years ahead of you. Best wishes B
Evening B, thanks very much you have cheered me up no end,
Take good care
J
Hi I was diagnosed with CKD back in 2009, although I did damage one of my kidney at School when I was about 11, I had blood in my urine and was told by my doctor that I had Bergers disease, it wasn’t until my 30s that I went down hill and ended up in hospital with high blood pressure and this is when I was diagnosed with stage 3CKD.
My kidney function has always been around the 40s I take Ramipiril for high blood pressure and I am on other medication for thyroid/uric acid, I was prescribed Dapagliflozin last year for protein leakage, I lost around a stone in weight as this is one of the side effect of this drug it blocks glucose reabsorption in the kidneys, causing extra sugar, salt, and water to be excreted in the urine.
At around the same time I was having stomach pains, which turned out to be my gall bladder, which I had removed last year.
My most recent blood test have come back as drop from 40 to 30 kidney function which has come as a bit of a shock, my renal doctor has put me on a 9 month course of kinpeygo.
.
Welcome to the forum, @millzy. You’ve been through the mill - pardon the pun - but I’m sure you’ll find a lot of support from others on the forum.
Maureen
On the Monday morning I awoke with back ache I had a normal day but then just before bed I started passing just blood with a little urine. A and E eventually CT scan 10cm tumour. Then removal of kidney.
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Glad they caught it, @Somersetboy. Hubby has lost both his kidneys to cancer and each time, like you, bleeding was the only symptom.
Same thing happened to me. Very sad, ii saw it on information written on the bottom of the Lab form, results page. Doesn’t make sense, on one hand it is shouted “Protect your kidneys to save your Heart” on the other hand, the GP doesn’t seem to take it seriously. I’m doing my own research to try keep up now.
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I have stage 3a related to poorly controlled diabetes but was told to try harder. Then I developed stage 5 because of sepsis.
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Hi Goose , Empagliflozin , which is a prescription drug benefits CKD and Type 2 diabetes.Have a word with your GP. Best wishes B
Even though we try to stay strong. It’s also okay not to be okay and reach out for support. I was diagnosed in Jan 2026 with ckd stage 3. It was a shock! I have only learnt about this forum… it’s helped to hear other people’s experiences and encouragement. Thank you all.
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Hello CRJ . Your pleasure is ours as well Best wishes B
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Hi Jacqui. It’s really bad when you don’t get info. I was diagnosed when I was told I had gout in Oct 2025. Hosp said kidneys were stage 3. I⁶ should increase water intake & decrease salt in my diet. When shopping now, I cook my own recipes without adding salt (I add pepper & different herbs for flavour). I’ve increased my fluid intake (mainly water and zero caffeine) and cut out crisps altogether. On my last blood test my kidney level was 2 
My med is Allopurinol 100mg, once a day. Hope some of this info helps you 
Julie x
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