Welcome @Paula to Kidney Community. Thanks for sharing your story. Glad that you are feeling better than you were before.
Welcome to the community @Birdblue7-9.
Welcome to Kidney Community @glyndwr. Hope you make some good connections here.
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Welcome @JEW. Great to have you as part of our new online community. There seems to be quite a lot of people on the forum already who are 70 or over. So good to have the older generation a big part of the community. Perhaps someone wants to set up a new topic aimed at those over 70 who are affected by kidney disease?
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Iām Mark,46 years old. I was diagnosed with stage 3a CKD (FJHN) in 2017. It progressed to stage 5 in mid 2024. Been on the donor waiting list since October 2024, and on Heamodialysis since February 2025 (3 x a week 4 hours in a unit). Still work full time, parent of 2 teenagers and run a youth football team.
Life is tough but key is to remove negatively about the situation into more positive actions.
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Welcome @Anthonytindall. Good to have you as part of the new community. While travelling can of course be very difficult when youāre on dialysis, some of the users on here manage to arrange dialysis abroad and may have some helpful suggestions. We have a sub-category ātravelling with kidney diseaseā that you might want to keep on eye on, or start a new topic in this area.
Welcome @Moss to Kidney Community. Thanks for sharing your story and some of the frustrations that youāve had. I hope you find this a supportive space to connect with others who have had similar experiences.
Welcome to Kidney Community @Jock. Impressive that youāre still working!
Welcome @Leigh. Thanks for introducing yourself. Love your determination despite what life has thrown at you. I imagine there may well already be other new users who have Alports too, so you might want to start a new topic focused on Alports syndrome and look to connect with them.
Great to have you involved in the community @Kwez04 and to hear that you want to be supporting others in this space as well as learning yourself. You may find the āCaring for someoneā section a useful place to connect with others in a similar situation.
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Welcome to the forum @DMM. Good to hear to youāre looking to change your diet for the better. We have an area dedicated to Diet here, that you should find useful. Appreciate you mentioned that youāve already got online advice and suggestions on this, but if its useful we also have some diet information within our health resources here.
Welcome to our new community @Caz. I hope that your upcoming blood test is positive news. And hope that you have some big plans for your 50th. Thanks for joining Kidney Community.
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Welcome to Kidney Community @Tania. Thanks for sharing your story. Life sounds really tough for you at the moment. Thanks for the advice to others to look for support from friends, family or social services. There has already been a new topic created for people in similar situations to your that you can find here. I hope that you find this new community a supportive space.
Welcome @BLESSEDWOMAN_85. Thanks for joining the community. As you may have already found, we have an area dedicated to diet here that you may want to explore and contribute to.
Welcome to Kidney Community @Mark79. Really admire your positive approach despite the difficulties youāre facing. I hope you find our new community a useful space to connect with others who find themselves in a similar situation.
Hi I am stage 3a on my journey. I am 76 years old so hope this is an aging thing. My husband has a transplant and is in his 11 year and doing ok I am his carer . Joined hoping for occasional support x
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Welcome @JeanBurton. Great to have you as part of Kidney Community. I hope you find the occasional support youāre after here.
Hi, Iām Ken, 72 and currently 6 months post transplant. I was fortunate as I was transplanted whilst eGFR was down to 7 but I had not begun dialysis. My kidney journey has taken almost 15 years since first diagnosis at stage 3.
Looking forward to meeting you all
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Welcome to Kidney Community @ken_cheshire. Great to have you as part of the new community.
Hi, Iām Rae, Iām in my 40s and live in the beautiful South West. Iām a month from being 9 years post transplant after doing PD for 2 years and being diagnosed in my early 20s. Very proud to say that I have recently become a CKD peer supporter for CKD warriors who are covered by Southmead Hospital who may have questions/queries or concerns. Really pleased to be here x
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