Hi there,
I’m a 38yr old parent with a young child. I also work part time and am on Heamodialysis. I struggle to feel like I am doing the most for my child due to feeling overwhelmed with my illness and trying to live as normal a life as possible (if it is possible!). Does anyone else feel this way?
Hi,
I feel like your feeling every day I’m not on dialysis yet but I’m stage 4.
They say dialysis is not for everyone, maybe speak to your consultant as they suggest something to help you/how your feeling about everything.
I hope this helps you.
Thanks Nicky.
I will just get on with it as i always do and suppose we have no choice but it’s always interesting to hear if other folk feel similar!.
Hi JohannaB87,
Reply to your message, I just get on with life day by day now as it’s the best way to be.
Taking that into account just make as many memories as possible with your family and friends.
Love Nicky x
I’m 46 2 teenage children, which makes it a bit easier, but still a huge disruption to things they should be doing in their teens, like foreign holidays etc. I often feel bad that they will not have those memories to look back on when they are older, just that dad was unwell and needed to go to hospital every other night. But better that than the alternative.
I’m lucky in that I’m able to work from home full time which allows me to attend dialysis in a unit on the twilight sessions 3 times a week. This has meant that I get to spend more time with my family than I would if I was commuting to London daily, and Whilst I’m incredibly fortunate to be able to hold down a well paid job through this, it has also stopped me from progressing my career over the last 2 or 3 years which is hugely frustrating. I’ve also started a football team for my youngest, alongside my wife. This not only gives my son a focus, but also provides us with a great sense of accomplishment
Thanks for your reply Mark.
Completely get the holiday thing! Ive been thinking about it a lot how much I feel my child is missing out on holidays. I dialyse at home and work the other 2 days as a community nurse but feel so exhausted mentally and physically.
Ive been back on heamo for 1year and I am already looking at holiday abroad options despite feeling apprehensive as I want to do it for my husband and kid.
You sound very positive and capable, its refreshing to hear about other people on dialysis who still manage to work and want to. I also understand when you talk about not being able to progress in work, having to sort of “accept” you may never be promoted due to illness and capabilities is another thing Dialysis takes away from you.
@Scarlettbelle I’ve just spotted your message in another thread which is similar to the conversations happening here. I’m really sorry to hear you’re having such a hard time and facing some really tough emotions - hopefully you’re able to see or ask for advice here from other people going through a similar situation. You aren’t alone in this