Your top tips for eating well with kidney disease

hello, It seems to be a very high potassium intake, so keep an eye on your levels. When the nephrologist told me that my potassium was high, I had to give up or severely moderate my intake of all the treats you are taking. Berst wishes B

1 Like

Hi… im stage 3a.. I was told to modify my diet (mainly decrease salt) and information said to exercise. I read up about the better diet. I was also encouraged to keep hydrated, 2L of water a day.

That sounds good to me, but watch your potassium levels as well. Best wishes B

1 Like

I feel the same, looking at diet sheets and seeing what I can and cannot eat. Also I have a stoma and a lot of things that they say to eat, my gut has a whale of a time pumping it all back out. Sorry if a bit graphic. I’m looking for a dietician in Basingstoke that might be able to advise.

1 Like

I think that you will find a lot of dietary advice on line. But, be careful, avoid American advice it is often contradictory or just plain wrong. Stick to the advice published by NHS Hospitals. My nephrologist told me to avoid Bananas, Tomatoes ,Nuts and Dried fruit which are high in potassium, so generally cut down or cut out high potassium foods eg. Bovril and Marmite are ‘no goes’ as well. Reduce your intake of dairy products and keep yourself well hydrated by drinking 1 1/2 litres of fluid each day,Squash/cordial ,(not Ribena), is ok but avoid concentrated or high juice types. Cress, both water and Mustard are very much a no go. I think that a little treat now and then is very important in keeping our spirits up. Personally , I avoid treat in the week before blood test or seeing the nephrologist . I was never one to do the right thing, but it has got me to my 80th year Good luck , Best wishes B

5 Likes

Thanks for that. Interesting.

Hi @Brenda!

Hope you don’t mind, but I have moved your responses regarding diet to this topic. You’ll see here many other users, such as @Beanbag, that have shared tips and advice on diet. There are also many others threads and conversations on diet in this area too: Latest Diet and exercise topics - Kidney Community

Brogan

My researches seemed to come up with the answer that brown whole meal bread was best with CKD. It’s difficult to find a commercial brown bread without salt so I cook my own soft brown whole meal bread without salt. It’s soda bread so easy to make. No yeast and kneading! I’m lucky to have the time. I think there’s less tummy rumbling when eating this bread. It is delicious and the extended family keep requesting it

3 Likes

Sounds good! Could you put the recipe on here please?

Jo

Me too! I am Type 2 diabetes and I am struggling to make sense of it all.

2 Likes

I am on the Easi-Kidney trial, part of which is Empagliflozin, This is a drug commonly prescribed for CKD patients. It has the added benefit of removing glucose from the system., so is beneficial for Type 2 diabetics as well. The trial people were surprised that my GP had not already prescribed it to me, being a type 2 diet controlled diabetic. Knowing my GP , I was not. surprised at all. Try mentioning it on your next GP visit. Best wishes B

2 Likes

I was referred to a renal dietitian who told me healthy foods to eat with CKD as I also have dumping syndrome where my body produces too much insulin. I have been advised to eat broccoli, cauliflower, apples, celery, digestive biscuits as there is less sugar in them than ginger nuts, seeded or grained breads, porridge oats, sweet potato with skins on rather than normal potatoes as there is less potassium or phosphates in them, fish, chicken, cottage cheese rather than other cheeses, greek yoghurt with fresh fruits, whole grain pasta, brown rice, red bell peppers.

Not to eat peas & carrots together, sugary foods, foods with high phosphates or potassium levels such as bananas. It was a lot to take in over a telephone call but I’m still learning & checking out recipes online or in cook books.

3 Likes

Hello

I’m new to my diagnosis of stage 3 CKD

Has anyone got a list of foods ( not recipes) that I can and cannot eat or recommend a low potassium book?

Thanks Denise

1 Like

Hi @denise72!

Welcome to Kidney Community :purple_heart: .

We have a few lists on our website that I think may be useful for you. I’ve linked both the webpage and documents below :smiley:

Healthy eating for kidney patients

Salty-Food-substitute.pdf (41.1 KB)

Ideas-for-good-foods-to-eat.pdf (47.4 KB)

Thanks,

Brogan

1 Like

It is the start of the UK grown asparagus season. Tuck in, it is low potassium with an ideal portion size of 6 spears. One of the highlights of the year ! Best wishes B

2 Likes

I would query bran being a no, as I have advice that to eat bran flakes for breakfast is ok

But certainly, dried fruit and boiling rather than steaming potatoes etc is sound advice

The NHS dietician I have is brilliant

It is my understanding that Bran is a recommended source of potassium, and is even highly concentrated in some bran products. Your dietician may be brilliant, but I would not be too impressed suffering with CKD. But, each to there own. Best wishes B

Fair enough, will have a review of my diet.

All I would add is my potassium isn’t massively affected negatively by it, but as you say, each to their own

Are you medically or a dietician, not asking in a negative way, just asking for reference :slightly_smiling_face:

Hello Chalky, I am neither, I was a forensic scientist 40 years ago and things have moved on tremendously since then.. But the research I did on a low potassium diet, (a must with CKD), flags bran as one to avoid . My nephrologist suggested Shredded Wheat or Oatabix/ Weetabix, which were my breakfast cereals any way, served with oatmilk. You must do as you think fit and I wish you well.Best wishes B