PKD can affect generations of the same family, many people have unique family stories connected to their diagnosis.
Has PKD affected your family? How has your experience shaped family conversations, decisions or relationships?
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CKD3A and like many of other us have been given no information from my doctor other than you can look it up there are plenty of information on the net for you. I do have cysts on my kidneys with they’ve told me about which also said I don’t need to worry about. You say about families my grandad died of a Tic sclerosis chronic nephritis. I’m not quite sure what that all is but is that hereditary? I have mentioned this to my doctor, but he just seems to wave it away and say don’t worry that’s always his answer. Don’t worry nothing to worry about. But of course one does worry very much so and it’s very scary when you have no answers from anybody. To have this forum to read and write on is a godsend thank you so much.
Let’s not forget to mention that PKD is not only inherited I was diagnosed at 38 no member of my family had PKD and from what I have been told is very common now, but very little research done .