Thankyou for your reply ,as I said I’m new to this really just been waiting and seeing like consultant said.
My egfr was 35 in November and now at 16 , had biopsy and it came back with fsgs and tubular indercisionitus (I think that’s what he called it) so started me on 40mg of prednisolone along with 30mg of lansoprazole.
It’s a minefield trying to understand everything , hopefully the steroids will help a lot
Hi Bee,
Did you get many side effects with the steroids?
And how are you doing now?
Talking about diet my doctor told me that I don’t need to bother at all about anything not to change my diet. I didn’t need to and just carry on as I’ve been carrying on, I don’t need to do anything at all. And I don’t know whether I am stage 3A or B I don’t know the difference. I was also told quite casually that I have multiple cysts on my kidney or kidneys. So I think it’s time I need to get a doctor’s appointment if I can.
Stage 3a is the stage most people are diagnosed so a lot of GPs or diabetes nurses don’t seem to be concerned. If I’d realised how serious later stages are i might have been more careful about what I ate. Also get yourself up to speed on the symptoms of a UTI as you’ll be more prone to them and an untreated UTI turned into a kidney infection which damaged my kidneys. That then meant sepsis broke my kidneys. If id recognised i had a UTI the first time chances are I wouldn’t be on dialysis.
Where on the net can you get diet sheets?
Hi 
you can find information on healthy eating for kidney patients HERE on our website, hopefully you find it useful, Beccy
Hi i’m looking to connect with other kidney patients.
I had an acute kidney episode 11 years ago and was stable at a low baseline until 18 months ago.
I had an unexpected deterioration in kidney function and was referred to the pre dialysis clinic for preparation for dialysis/ transplant.
I have made lifestyle changes and my function is now stable so at present i’m just being reviewed in a general nephrology clinic.
This is obviously positive but the last year or so has been a real rollercoaster and i’m not sure how I should now be feeling.
Hi, rollercoasters seem to be the kidney patient way 
Depending on where your eGFR is, whatever you feel, then that is right for you. There isn’t a right and wrong way.
I’ve been through anger, frustration, hope and despair, resignation and now in the forward thinking route most days ( or try to be)
Most importantly, listen to your body. I’ve felt rough the last 2-3 days, ended up sleeping 14 hours last night. Feel better for it, and I haven’t had an episode like that in 4-5 years. Don’t know if it’s a one off yet, or if I’ve deteriorated more than I realised, as I was like that a few years ago needing big periods of sleep, but had been good for a few years now
What are you dialysis plans?
My EGFR is 21 so I don’t need dialysis at the moment everything is on hold and I’m being monitored.
I feel quite unwell very fatigued and a little light headed. Guess will have timed like this without any particular change in my condition
Yes, it can be like that for sure, mine is 12 now and I get light headedness and fatigue on and off, and did through the low 20’s - teen numbers at times
Everyone and every day is different though. I managed a 5 mile walk today comfortably and could’ve gone further, but I couldn’t face doing even a 2 mile walk yesterday as I felt so tired
Medication may help your symptoms if they’re tied in with BP or your kidney function too, so there may be changes anyway and improvements, depending on what’s causing your kidney failure
Keep positive, that’s the main thing and try not to let the bad days drag you down, just mark it as a bad day and see what tomorrow brings
Thank you sure it’ll pass again !!
Hi,
Got told this week I have chronic Kidney Disease which is Stage 3. I am worried about this as been pushing my GP for months to do some tests.
I have symptoms which is dirty coloured urine, at times can be frothy. The urine tests have shown a rise In Protein, blood.
At times my ankle does get swollen.
Can I reverse the Stage and what should I try to eat . Am also worried about the urine output has dropped, and I do drink enough fluids
Any advice would be appreciated.
Mark
As per your other post and reply, you should be ok, just keep tests and be monitored
Have any of you had muscle pains?
I currently find it difficult to weight bare on my right leg, have had tray no fractures in hip but the pain trying to walk is bad, currently taking co codamol prescribed, but not really touching it, I have tried heat patches and gels, any advice would be appreciated
I bavent had pains as a result of CKD.
It may be a trapped nerve but it sounds like it needs looking at and maybe the physio at your GP surgery can help,
Forgot to say I’m on steroids treament
Regular hip pain with CKD and steroids, sounds like you need to see the GP or your consultant as soon as you can to get it looked into properly 