Welcome @K-Ann!
That sounds like an awful lot to go through, but I am sure others here in Kidney Community will be able to relate to you 
.
I really hope you’ll be able to use this space to widen your knowledge!
Hi @cowintwister! Welcome to Kidney Community .
I’m sure many members here will be able to relate to the decisions you’re facing around dialysis. Has your kidney team given you the opportunity to speak with people who have experience of peritoneal dialysis or home haemodialysis?
Great to have you with us @Mstracyanne!
I’m sorry to hear that you’ve only just been told, however we are all here to help you through this. Have you had the chance to discuss your concerns with your GP since your diagnosis?
Thanks for sharing your kidney connection @Saml2123!
Are there any questions you have to mind you’d like to ask now? 
Hi,I’m Colin , I have CKD 4, I have had this for many years but has deteriorated more for the past 5 years , I’m diabetic well controlled , I had hypertension but his has improved since my heart surgery a few months ago . I have support from the nephrologist and dietitian, but there is no,local,support that I am aware of . I,look forward to contributing to the group and having support
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Welcome to the group Colin
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Hello all,
I’m Sarah, I crash landed at stage 5 on the Queens Jubilee weekend IGA Nephropathy only a few little symptoms that my doctors put down to ear infection (vertigo) and possible pregnancy (swollen anckles and feet with sickness).Nurse was the one that questioned my blood pressure over 210 as an issue and bloods were taken. I must have got used to feeling rubbish as I felt OK, just tired. Biopsy taken and then crashed hard. Started straight into peritoneal dialysis and struggled with pain everytime they tried to start the machine.
Stuck on that for a year, it just ticked me along but always felt rubbish with metal taste and ichy skin. But I got to continue working. Then it stopped working 2 weeks before my transplant due from my brother. Then had to have hemo hospital dialysis 3 days a week. Now 3 yrs post transplant and feeling better, just always reminded that a UTI is just a day away, covid catching you at any time and covering up from the sun all the time.. As much as its been hard I am grateful I got a second chance. You have to roll with the punches and get up again!
Yha k you Beccy! My operation is set for 21st of this month.
I am going to ask for dialysis by overnight machine, so i can continue with my volunteering role.
It would be lovely to speak to someone whi has not long started overnight dialysis, to find out how they are managing ?
George
Hi Sarah, thank you so much for sharing your story, you’ve really been on a rollercoaster journey! It’s mind blowing to think about how minor your symptoms seemed but ended up changing your life so dramatically. Despite everything you’ve been through, your positivity really shines through. “Roll with the punches and get up again”!
I’m so pleased you’re doing well three years on from your transplant. Thank you again for taking the time to share your experience with us. I hope you find the platform useful and find whatever you’re looking for each time you log in Beccy
Hello all
I’m 64 with Stage 3b CKD (G3b)
Get tired very easily, Don’t Sleep well
Left my job a 2 years ago as I Could not hold a full time Job anymore. My Question to this blessed group would I be entitled to any financial help ( I’m not on benefits or anything like that) thank you Anna B
Hi Anna, you may be entitled to Personal Independence Payment benefits. I didn’t know anything about this for a long time and it was a nurse that told me. It doesn’t take any savings into account and they talk to you about your symptoms and how it affects you. The tiredness is the worse, brain fog and lack of energy, you may need someone with you to help with the claim and call, if you have family or friends as it can be hard to talk about everything. Wish you all the best with this.
Hello, I’m Reece, 27 from Wakefield.
I currently have Chronic Kidney Disease Stage 5 at 9% function. Not on dialysis at the moment but are on the waiting list for a transplant.
I’m under the care of all the fantastic staff at St James’ Hospital at Leeds. Great to see such a variety of ages on here. I’m looking for some suggestions on which dialysis to go for, I need it to impact my work and family life as little as possible (I know they will all have an impact regardless) as I have 3 beautiful children aged 4, 2 and 3 months.
Could anyone offer some advise, ideally if you’ve personally had a certain type of dialysis please?
Hi, I am Sharon from Filey and have stage 3A CKD. Diagnosed 6 months ago, when I was told my urine test had shown a deterioration. This was a shock, I didn’t even know there was a problem! Seems in UK generally they don’t tell us until we are stage 3, wish I had known earlier to make changes.
Currently changed diet, and exercising a lot more. By the way - I’m 72.
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Hello everyone, Rukhsar here! … I’ve been a kidney disease patient since birth, I’ve been on two types of dialysis throughout my life and I’m now on my second kidney transplant 
all going well this far! I have been an ambassador for a few years now. And support my local community to my best abilities, both at my transplant clinic and my old dialysis unit also.
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Hi Reece, I’m in a similar position, working and needing dialysis soon, and have opted for home HD. I am currently awaiting my fistula to mature sufficiently.
I think it may be the best option to allow me to work normally and then hook up in the evening for a couple of hours each night, and if I don’t one day, then do extra the next.
My consultant recommended it as I am still active and “well” and that it would work in my lifestyle.
I also didn’t want the bind of travelling to a unit, our local one has a long waiting list apparently anyway, and I’m advised that recovery to feeling better after the days treatment is more like 20 minutes than what can be a few hours in on dialysis every other day
Good luck 
Hi I’m John I’m 71 yrs old and have ckd3 when I was told by my doctor about 2yrs ago he said you have had it for 2yrs already it took me 9weeks to see a doctor about it only for him to say oh don’t worry about it take everything in moderation you will be fine since then I have had 2lots of blood test and never seen a doctor about them
Hi Sharon,
Welcome to the Kidney community great to hear you’re exercising and managing your diet, not just good for your physical heath but also your mental health.
Totally understand that must of been such a shock to get the results of your urine test. You aren’t alone in being blindsides by kidney disease and not having any obvious symptoms before a diagnosis. A big goal of ours at the charity is for people to be diagnosed as early as possible, before stage 3 which can definitely be done. Doctors are expected to tell someone at any stage of kidney disease. I wonder if anyone else on here has had the same information you’ve been given?
Take care Sharon and i hope you enjoy navigating your way through the platform.
Beccy
Hi I’m Rosa I have been on CAPD and APD and I’m now on Haemodialysis. The last 20 months have been quite a difficult journey.
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Hi Rukhsar, lovely seeing your name pop up you do so much incredible work in your community already, its nice to see you here too. I hope you enjoy navigating through the platform and find support or any answers to questions you may have, Beccy
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Hello, I’m Paul, more commonly known as Simmo.
I have recently been diagnosed as having stage 3 Chronic Kidney Disease. I was given my diagnosis by text message with a link to a pdf. Cant say I was impressed.
I’m told that CKD at stage 3 can be managed effectively through diet but the more I read about diet the more confused I become. Some sites say no oats others contain recipes for oats, the same with tomatoes and numerous other foods. Is there a definitive guide anywhere out there.
Thanks
Simmo