Hello James. Seems that you have your life in order. I hope you get your 2nd transplant soon. What is the current waiting list ? I am not going down your route as I think at my age the surgery alone could be problematic. You have over 20 years on me so go for it ! Best wishes B
Hello beanbag I have no clue about the transplant list,itās my weight that is holding me back other than that Iām fin dialysing at home have some other health issues but they are not holding me back from transplant.
Hi James
Twenty-five years is quite impressive! I can imagine your machine is quite different to what you were used to! Hubby has only been on dialysis for 7 years and the machine has been replaced (by a much better model, I have to say. Welcome to the forum.
Maureen
Hello, Iām Lianne.
I am 48,
Diagnosed last summer with CKD stage 3 (end of)
Both my parents had/have it. My mam is stage 3, my dad sadly passed away 2022 from CKD.
Hoping to get some advice as I also have diabetes and Fibromyalgia. Work part time.
Hello maureen,Thank you for contacting me yes the machine is very different a fresenius 5008s is what Iām on now canāt even remember the one I was one all those years ago I do 5 hours 3x a week kind regards james
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Hello Aura
Thanks for your reply. This was all found because I have been trying treatment for high blood pressure. Everything I take I seem to be having a reaction. It was just chance that I had a check on a water sample. I tried a new bp tablet a couple of days ago and had a really bad reaction. I donāt know if this will be harmful to my kidneys. I am trying to drink much more water so hopefully it will wash through.
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Hello, If it is of any use, I am on Ramipril and Doxazosin , and have been for many years My blood pressure has remained at 120 / 65 since 2015 with very little variance. I have had no discernible side effects during this time. Wonder if this might be of help. Best wishes B
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Hello
I have tried Ramipril and several others, within half an hour of taking them my blood pressure shoots up to around 220/125 ish.
Iām getting fed up with trying new ones and nobody finds out why! I asked if they are damaging my kidneys and told no itās ok!
Thanks for your information though.
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Hello everyone Iām stage four GFR 18% Iām 80 years old I go to the gym three times a week and watch my potassium level very carefully I have other health issues but CKD is probably the worst
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You put me to shame, with your gym regime @stangilbert! Good on you!! 
Hello, Same age as me. i am stage 4 with an EGFr of 21. I do not know where my local gym is, but I do have 3 acres of garden which keeps me quite active. I have been banned from cleaning the gutters, which are about 25 feet up. My wife has padlocked my ladders. I agree, CKD is probably the condition we have least control over. Even following a careful diet, kidney degradation is the main problem. It is what it is , and our 3 score years +10 is along way back. Best wishes B
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Hi, Im Gill, I have CKD 3a. I was diagnosed last year. Im following diet as best I can.
I look forward to any help and tips, also to meet with other CKD people through text if this is allowed.
Thank you for accepting me.
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Hi, Iām mum to twins with HHRH, Nephrocalcinosis and hyocalceria. HHRH is so unique that only three people in Scotland have it and I have two of them! I was wondering if anyone on here has HHRH?
Hi my name is Tim I am at ckd 5 waiting to start dialysis just come out of hospital again as the vein to fistula started to close up. Since diagnosis 6 months ago I have lost4 stones in weight, I am trying to get on a transplant list which said no to 3 months ago as they said I would not survive the operation. I also do very basic exercises as movement is restricted due to cod.
Hi Gill,
Welcome to the group 
I hope you find this space a great place to learn more about diet and exercise related to kidney health and chat with others to get their thoughts. You can direct message people using the platform but we ask people not to share any phone numbers or email addresses in a public message. We hope you find some likeminded people on here and enjoy getting to know the platform.
Beccy
Hi Tim, welcome and thank you for sharing your story. It sounds like youāre doing a great job taking care of your weight but if you need some extra tips, have a browse through this page on our website Diet and exercise. There are also lots of people discussing stage 5 ckd, transplants, dialysis and everything in between, so feel free to look around the platform, we hope you find it useful.
Beccy
Hello welcome and thank you for sharing your unique story. I can imagine you get ātwins, what a handfulā and people donāt even realise the half of whatās going on! It might be worth having a browse through this category - parents of someone living with kidney disease. It could be wroth getting some support from others who are in similar situation even if its not quite as specific as having HHRH. I hope you manage to find a bit of support and advice
Beccy
Hi lindy sorry your ckd wasnāt found before but it has now.i was lucky although I had ckd I had 1o years of good blood pressure before it rose.im on 3 medications now alodopine bisoprolol and ramipril but I tried many others before the right ones for me so hopefully theyāll find the correct ones for you.as youāve not long been diagnosed I guess you donāt have many other symptoms which is amazing .hopefully youāll see the right consultants now and remain stable I send you positive thoughts for your journey ahead but if you have any questions or any symptoms your not sure about Iād be happy to help if I can xx
Hi,
Nathan here. 5 years on CAPD, and then a transplant.
so far, so good.
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Great. And long may it stay that way. Best wishes B