Welcome @Chas67. Thanks for joining the community. We have a diet category that might find useful to post in. We also have some useful diet tips and advice on our website here. Hope this is useful.
Welcome @Whellensc18. Thanks for becoming part of our new online community. I hope you find it a supportive space and meet others who share your experiences.
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Hi, Raven
Partial nephrectomy in 2018 removing the left kidney. Itching started about 2 years ago, drove me nuts.
Surgery prescribed the cream and it really worked. If yours is old , it may not work
With Crotatmton was what was prescribed so I would suggest you get the same
Think Boots may sell it?.
Let me know how you get on
Regards
B
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Hi, Beanbag,
How very strange it started so late. I am still housebound. I have had awful balance and vertigo since the operation and am a danger to myself. I have to cling to a wheely walker around the house to do anything.
Thanks for the advice on the cream
Keep smiling!
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Hi, Iām 65 and have had CKD stage 3b since 2017. I try to keep as a active as possible with a healthy diet, but still struggle to keep my weight down.
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Thanks for the email. Iāll certainly give it a look
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Welcome to Kidney Community @Jules. You may want to check out some of the advice and tips that people are already starting to post in the diet sub-category. I hope you find this a supportive online space.
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Well done Alan. I am impressed. Good luck to you and your wife.Best wishes B
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Hello, I have been put on Empagliflozin. This is supposed to be beneficial for both CKD and diabetes. An added benefit has been weight reduction, I lost 8 lbs in 3 months and was in my BMI range to start with. Might be worth investigating with your GP from the CKD point of view.
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Hello Everyone. Iām 69 and now at stage 4 ckd, having had familial high blood pressure and medication since my 30s. I have to say that I worry about moving to the next phase with all the changes to my lifestyle that it will bring. Iāve just started taking Empagliflozin and am hoping it will delay further deterioration of my kidneys, but time will tell. Iād be interested to hear how others have reacted to this (I like the idea of losing a little weight!).
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Hi Gill. I am on the Easi-Kidney trial that has Empagliflozin as one of itās constituent parts. I have been taking this since October last, but it is impossible to say what effect it is having., as who knows where I would be without taking it. I have suffered no adverse reactions to the drug , but it has reduced my weight by around 8 lbs during that period . I was within my BMI , but, the loss is welcome. I am stage 4CKD as well, but am early 80 and have had CKD since 2018. Good luck. B.
Hi, thanks for your reply. I did actually this drug last year, but found it completely disrupted my sleep pattern, to the extent of virtually no sleep so my Dr took me off it. Iāve often wondered if anyone else has experienced this symptom .
Hello welcome here iam new also stage 2 kidney disease
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My sleep pattern is terrible, whatever time I go to bed I am always awake until 3/4 am , then iI I drift off for about 3 hours and that is it. Bad before Empagliflozin and no better since starting it.
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Hello, I had my left kidney removed 3 years ago because of a staghorn stone that completely destroyed it. I also have psoriasis, orthostatic hypotension, a heart arrhythmia, a cyst in my brain and have recently been diagnosed with fibromyalgia. Yet I still feel like Iām just left to get on with it. The only place where Iāve had some level of understanding is the pain management team, where Iāve learnt about mindfulness and meditation.
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Welcome to Kidney Community @Chelbon. Sorry to hear about all youāve been through over the last few years. Good to hear that mindfulness and meditation has helped. I hope connecting with others in a similar situation on this forum proves useful for you.
Hi Iām Angelina,
I have a rare kidney disease called Gitelmanās Syndrome which is extremely low potassium.
My kidney journey began in 2017 when I found out by accident that I had this since birth so itās been a bit of a learning curve the past few years for me.
About a year ago I was looking for some peer support and there wasnt any in my area which encouraged me to become involved in volunteering. I am a Community Ambassador for Kidney Research and have several other roles within the renal world.
Nice to meet you all 
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Good for you and welcome
B
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Welcome Angelina, thank you for sharing your story and for all the amazing work you do as a community ambassador. We hope you enjoy using our new platform to connect with others
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Hi I hope Iām in the right place. Iām Paula, I have fibromyalgia and recently was diagnosed with CKD 3. Iām currently switching across from propanolol gradual release to propanolol instant release with a view to reducing completely so I can go on the tablet thatās good for my kidneys. Canāt remember the name it begins with Cā¦..Anyway Iām sat here knowing I have to change my eating habits to kidney friendly and (lose weight just on a side note). But my energy levels are on the floor, maybe under the floorboards at this point. I canāt help feeling I should have more guidance than just āYou have CKDā and given a letter saying not to worry too much. My default is to panic and I have depression too but Iām on meds for that. Like how do I get my energy up im feeling crap guys and a bit on my own with all this ā¦.
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