How long have you had your transplant? And is it your first?

Transplant Living with a transplant
1

Many people have lots of different experiences with having a kidney transplant for lots of different reasons. Why not share your transplant journey with others. How long have you had your transplant? Is it your first?

1 Like
2

I had my (first and only) transplant in August 2008, donated by my amazing brother.

I had a slight case of rejection in 2010 but since then have had no major problems.

I am METICULOUS with my timing of medication dosage and observe the restrictions on before/after food. I believe that this has helped the longevity of my Tx and recommend others to take great care with medicine/food timings.

5 Likes
3

Hiya. I have been amazingly lucky with a successful transplant since 1979 as a child (one of the earlier child transplants). I was fortunate to trail the new peritoneal dialysis machine before hand. Many highs and lows health-wise but at the moment my joints are suffering after 47 years on steroids- waiting for a double hip replacement at the moment. I was wondering if anyone else had experience of joint problems as a result of the medication?

2 Likes
4

Hi. I’m on my second kidney transplant, 11 years in, retired, got a few heart problems but being managed, and generally doing ok. But I thought I’d reach out to the kidney community to ask if others have some of the more minor issues associated with long-term immunotherapy. For example I’m wondering if others have issues with recurring cold sores in the corners of the mouth. I apply Acyclovir cream virtually continuously throughout the day and overnight, but the little devils keep popping up

4 Likes
5

Hi. I’ve had my cadaver transplant 38 years - the kidneyversary was last Sunday. Another one who’s been incredibly lucky.

6 Likes
6

Amazing! But I’m sorry you’ve had some issues. I tapered off steroids after more than 20 years on them, partly because I was worried about my bones. It wasn’t easy, I was very achey and breathless for a while.

2 Likes
7

I’ve had my transplanted kidney for over 13 years. In 2017 a biopsy revealed that the cause of my CKD was damaging the transplanted kidney. My KF declined, but is now (touch wood) pretty stable at stage 3b/4. Taking a SGLT2 inhibitor (dapagliflozin) really helps.

1 Like
8

I had my one and only transplant in April 2019 and Iam fgeeling very good on it

1 Like
9

I am 13 months into my first transplant, it was a live one from my amazing brother.

Ive had a few hiccups along the way, but fingers crossed right now it is doing really well

3 Likes
10

Great. Pleased it is going well Best wishes B

1 Like
11

Wow @Angharad, truly wonderful to hear everything is going well post-transplant (minus a couple of hiccups!)

How is your brother doing? :grinning_face:

Brogan

1 Like
12

Hi Brogan, he is doing absolutely amazing apart from some issues with his blood pressure, he was back doing or trying to do normal stuff 2 or 3 weeks after leaving hospital. He is truly amazing

1 Like
13

This is so fantastic to hear, I am so glad he is doing well! He must be so amazed by your strength too :purple_heart: .

Did you do anything special to mark your one year kidneyversary? :partying_face:

Brogan

1 Like
14

He is amazing and is very happy and pleased with the difference in me from before my transplant, he jokesthat its doing better for me than it was for him hahaha :laughing:.

I went out for a meal with my husband and daughter, I did want to do something bigger but I was disappointed that no one planned anything or made a big thing of it for me but I am not bothered as I was with the ones that supported me and matter the most.

I am also alive so I don’t care about anything else :heart:.

What about you, are you transplanted, dialysis?