How long have you had your transplant? And is it your first?

Transplant Living with a transplant
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Many people have lots of different experiences with having a kidney transplant for lots of different reasons. Why not share your transplant journey with others. How long have you had your transplant? Is it your first?

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I had my (first and only) transplant in August 2008, donated by my amazing brother.

I had a slight case of rejection in 2010 but since then have had no major problems.

I am METICULOUS with my timing of medication dosage and observe the restrictions on before/after food. I believe that this has helped the longevity of my Tx and recommend others to take great care with medicine/food timings.

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Hiya. I have been amazingly lucky with a successful transplant since 1979 as a child (one of the earlier child transplants). I was fortunate to trail the new peritoneal dialysis machine before hand. Many highs and lows health-wise but at the moment my joints are suffering after 47 years on steroids- waiting for a double hip replacement at the moment. I was wondering if anyone else had experience of joint problems as a result of the medication?

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Hi. I’m on my second kidney transplant, 11 years in, retired, got a few heart problems but being managed, and generally doing ok. But I thought I’d reach out to the kidney community to ask if others have some of the more minor issues associated with long-term immunotherapy. For example I’m wondering if others have issues with recurring cold sores in the corners of the mouth. I apply Acyclovir cream virtually continuously throughout the day and overnight, but the little devils keep popping up

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Hi. I’ve had my cadaver transplant 38 years - the kidneyversary was last Sunday. Another one who’s been incredibly lucky.

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Amazing! But I’m sorry you’ve had some issues. I tapered off steroids after more than 20 years on them, partly because I was worried about my bones. It wasn’t easy, I was very achey and breathless for a while.

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I’ve had my transplanted kidney for over 13 years. In 2017 a biopsy revealed that the cause of my CKD was damaging the transplanted kidney. My KF declined, but is now (touch wood) pretty stable at stage 3b/4. Taking a SGLT2 inhibitor (dapagliflozin) really helps.

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I had my one and only transplant in April 2019 and Iam fgeeling very good on it