Hello I am 65 year old Deaf man using sign language.
Diagnosed as CKD at tender age of 29. CAPD for 6 months before 1st transplant that lasted for 20 years. Back on haemodialysis for 2 years before 2nd transplant which lasted for six and half years. Now on haemo for 6 years. I have been advised that waiting time for 3rd transplant is eight years so I have two more years before I can start hoping for third transplant.
Welcome Kiran. Sorry to hear that youāre feeling overwhelmed at the moment. I hope others in this new community who have undergone PD themselves will help provide some insight and support for you. You might want to start a topic or post in the category for dialysis and see what advice people can offer.
Hello
I care for my husband who is still fairly newly diagnosed with late stage 4. we are still navigating a lot of information etc. Its good to be part of this community. Thanks for sharing information. Im not sure if there is a specific category here for carers. It can be hard being a good ācheer leaderā for the person going through it while also managing your own fears about the future. Im sure plenty of others have had that experience. Thanks, Hetty
Welcome to Kidney Community Deaframbo. Hope you find some supportive new friends on this forum. If you wanted to initiate some more conversation specifically around transplants and the wait that it can involve, then feel free to do so in the ātransplantā category within the forum. Great to have you with us.
Welcome Hetty. Good to have you as part of the community. There is indeed a specific category for carers, so please feel free to start a new topic in this area.
Hi Iām Viv
I had a transplant almost 5 years ago.
All is well but Iām struggling to lose weight and I do feel tired a lot of the time.Fortunately I am retired.
Welcome Viv. Hope you enjoy being part of Kidney Community.
Hi, this is Glider. Iām 80 and currently I am at stage 3b of CKD. Iām new to CKD so I have joined this forum to find out more about what I should be doing to keep as healthy as I can, find answers to questions I have and learn from those who know more about this topic that I do.
Hi everyone, my name is Dawn
Kidney Research UK has always been very close to my heart. Iāve been a kidney patient since birth, having been diagnosed when I was just three weeks old, so kidney disease has been part of my life my whole life.
Over the years, Iāve experienced many aspects of kidney care, including peritoneal dialysis, haemodialysis both in-centre and at home, and kidney transplantation. Iāve had two transplants.
One of the things I really value now is being able to give something back through peer support. I love turning my lived experience into something positive that can help and support others.
Iām also one of the Kidney Research UK Community Ambassadors, which is a role I really enjoy and find incredibly rewarding.
Iām also heavily involved in the Scottish Kidney Federation with my current role being secretary.
Itās lovely to meet you all, and Iām really looking forward to being part of this community 
Hi all,
My nameās Grant and Iām 39 from Edinburgh. I was diagnosed with CKD at age 30 and I found out at the same time that I had been born with only one kidney. Iāve managed to keep myself as healthy as possible since then, although my eGFR is now 14% and Iām currently waiting on an appointment to have my fistula fitted.
Really glad this community has been created. 
Thatās great. Welcome to Kidney Community Glider. As well as learning from others on the forum, you can also view the health information resources on our website if this is useful.
Iām llanlis, bipolar obese, ckd fatty liver, maybe cirrhosis. Been looking for foods for ckd fatty liver,low fat low salt low phosphorus low potasiumm had have high potassium bloods. Writing soon to here for health. Berries and some veg good. Fish ok. Eggs ok.
Great to have you as part of the online community Dawn. We hugely appreciate all the time you volunteer and ways in which you give back to Kidney Research UK.
Great to hear your positivity about the new forum @Grant. I hope you find it a friendly, supportive space.
Welcome to Kidney Community @Llanlis
Hello
At the age of 26 my son was diagnosed with IgA nephropathy in December 2023 after suffering symptoms of declining kidneys for some years since university. He visited his GP at that time but no referral was made to his local hospital renal service and no connection was made having had recurring UTIs as a child and a blood test revealing a decline in kidney function and finding protein in urine. Whilst training to become a teacher, he became ill with more symptoms, experienced disturbed nights and had high blood pressure. My son visited our local GP who referred him to our hospitalās urology department after finding blood in the urine, who didnāt find anything and suggested that the GP did another blood test and referred to the renal service, neither of which happened and all the while his kidney function was declining. After training my son began work as a high school teacher and during the first term, he additionally suffered bad headaches and looked very bloated. I remember one afternoon when he returned home, he went straight to the bathroom and vomited. By this time we had changed GP practice and my son visited the GP because of this and also blood pressure readings were extremely high. The GP thought he was suffering with stress because of interrupted sleep at night and sent him away with a sheet of paper from the wellbeing service. He got a blood test appointment for two weekās time, had that and then received a call from the GP telling him to go to the hospital emergency department because his kidneys had failed. At the emergency department they couldnāt believe he was still standing with an eGFR of just 4. He received dialysis 3 times weekly for 4 hours for the next 20 months, still feeling ill, until he received his new kidney in August last year. He will need immunosuppressants for the rest of his life. He says it is great to be feeling well again.
As a family we have been affected by the whole episode and today I am still angry because the progression of this disease could have been properly managed, and wasnāt. Trust in GPs is at an all-time low, the warning signs were there and they failed to act in his best interest by onward referral to the renal service, when he was at university and since returning home. There ought to be learning about this so that ācrash landing in the emergency departmentā isnāt the expression used as an excuse for an avoidable occurrence.
Hello, Iām stage 5 and about to start haemo. Iām hoping to learn from you all to help navigate this awful situation xx
Hi @ceinwenwilson. Welcome to Kidney Community and thanks for sharing your story. Sorry to hear about your experiences of primary care, but pleased that your son received a new kidney and is feeling well again.
Thank you for this, and yes, he is feeling well and has returned to work full time.
Welcome to Kidney Community @Lyn1. Does anyone have any useful advice for someone stage 5 and about to start haemo? I hope the community can provide some helpful advice. You might also find our haemodialysis information page useful.