Introduce yourself

Hi guys its aura here I hope your all having a great day but if not it’s OK to not be OK and were all here to listen. I’m having a bit of a problem can anyone help? I’ve been getting the really hard itchy lumps on my face which then turn into red scabs and flaky scaly skin.does anyone else suffer from them and if so what do you use? I wouldn’t be as bothered if they were anywhere else on my body bit there on my face for all to see and I’m getting really self conscious. If anyone can help I’d be really grateful

Thanks aura

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Really appreciate you reaching out Aura. I don’t have the answer on this myself, but I hope someone else in the community can help point you in the right direction :purple_heart:

I am so shocked that there is going to be no treatment… that I now have painful shingles! Well that’s what I’m thinking!

Is it safe to leave the cyst alone for 6 months?

Hi @Jen50solihull!

That does sound super tough indeed, especially with being in pain too. Sending my well wishes. :smiling_face:

It’d be best to check with your GP or kidney team about this, just so you can get the right advice and reassurance. :purple_heart:

Brogan

Hi. I’m Carole and I’m 83. I appear to have mild to moderate loss in kidney function. I say appear because I’ve seen my test results and I’m 3a I reckon. Waiting to see my GP. I don’t know if my problem came from chemo some 10 years ago but I’ve got the itchy skin, wheezing when walking, etc., so any hints on diet or what else I can do in the meantime would be helpful. Goodness knows when I’ll get to see a nephrologist, which is suggested in my test results. So anything I can do in the meantime would be a bonus. I am osteopenic so take calcium and vit D but think I’ll stop taking supplements until I find out more. Thanks in advance.

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Thank you Brogan.

Had a long journey to a prearranged holiday and I will endeavour to come to terms with my complicated medical history culminating in this latest diagnosis. I have always trusted my consultants. So I will tell myself that I should trust his advice and be happy for monitoring.

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Hi @Greensleeves1!

So glad to have you with us here :purple_heart: .

I know the waiting period for your appointment can feel uncertain but I just want to let you know that you are certainly not alone and many people here will be able to relate to what you’re going through. Thank you for sharing :purple_heart: .

Many other users have very kindly shared a lot of their diet tips here:

Your top tips for eating well with kidney disease

Brogan :blush:

Hi Everyone, I have just joined this community. I have CKD stage 4 and trying to prevent my condition worsening.

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Hi @Sez!

Welcome to the forum. I hope you are able to have a little look around at some current and previous posts to help you through your CKD journey :purple_heart:

Brogan

Hi Jockie here, I am 65 and past 6 months have been getting sent for blood tests once a month. Apparently high levels of potassium and low levels(47) of eFGR but not seen GP to discuss this which is a concern. Any info would be greatly appreciated.

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Hi @Jockie!

Welcome to the Kidney Community :slight_smile: .

Has your GP encouraged you to make an appointment with to discuss your specific concerns further?

Brogan

Only just managed to get an appointment for next week so will see how that goes.

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Glad you managed to get one in! Let us know how you get on :grinning_face:

Hello, my name is Monica

I have CKD stage , just this week my Consultant has referred me to the Low Clearance Clinic at the Dialysis Centre for the first time, as things are slowly getting worse. I’m pretty worried as I fear Dialysis.

Am I being silly?

Hi my name is Liz. I have CKDEGFR 18. I am still very angry with a medical profession i.e. my GP.( Have now changed.) over years I had repeated urine infections sometimes he would send them away sometimes just dipstick., he retired. I had an appointment with him on the day he left I said goodbye and as I was going out the door he said look out for your kidneys!

I joined another GP who was very rude to me and said I was going around with 33% of my kidneys working. She was very angry with me aggressive with me made me feel that I was doing something wrong. I did not even know I had kidney failure because my previous GP did not read or denied reading my EGFR results

I have been on many kidney Foreigns and see a lot of of this same behaviour with GPs and something has to be done to get them to recognise. There is a problem with peoples kidneys when their EGFR is falling. Does anybody know what can be done about these irresponsible people that really don’t care I don’t even know why they’re working within the Nhs. They are failing people or is this a deeper thing going on?