I think that I am on Fast Spin ![]()
Hello beanbag
Loved you take on washing machine approach for kidneys.
Best wishes P
Iām not an expert but it may well have been from the infections you have had. I was a nurse in a kidney transplant team a long time ago. Have you had a kidney scan? Sometimes that can help to solve the mystery. My husband has CKD4 and on the same drug as you, he seems stable at the moment.
Hello Fran,
You have an interesting background. Iāve had an ultrasound and the test where they inject you with radioactive dye - that actually showed my kidney function wasnāt quite as bad as the blood test was showing. The ultrasound was clear. Glad to know your husband is stable.
So great to see so many wonderful new members joining! If youāre new here, pop a quick āhelloā below and letās get to know each other ![]()
We also have lots of other topic areas that you can start chats on, so please feel free to ask any question that may be on your mind.
Brogan
I am having a DSMA scan.. is that what you had. If so how was the procedure?
Iām not sure! I canāt remember what it was called. It was a radioactive dye injected into my arm which then travelled around my body until it recorded how my kidneys were flushing. Itās supposed to be more accurate than the blood test and I guess may pick up anything which shouldnāt be there. It was painless and quite fun in a āwow Iām radioactiveā type way! It wasnāt scary or very invasive.
My name is Jo. At a doctors appointment this week I learned that I had chronic kidney disease stage 3. No one had informed me, it was just by chance the paramedic saw it in my notes
Hello, Jo. It seems to be a common way of finding out , as the āprofessionalsā do not appear to want to tell you to your face and discuss the implications. I suggest you contact the doctor again and request aplan of action. Good Luck. Best wishes B
Thank you Beanbag, I will.
Hi everyone Iām Puja, 33. I have been diagnosed with CKD my current EGFR is 36 - I think thatās stage 3a?
It was quite a shock to my family, but staying positive!
Hi @puja.sultani! Thanks so much for joining the Kidney Community ![]()
I am certain there are others here who too are at stage 3a, so hopefully you can connect and discuss anything thatās on your mind.
Love to hear that you are staying positive ![]()
Brogan
Thank you for this information. I really appreciate it. I have mine in a couple of weeks.
Thinking of you. It can be a shock. Im stage 3a also. I have been told to change my diet (lower salt intake), exercise and drink 2L of water. What was the GPs advice for you.. it might be different for everyone.
.
I know crazy.. I was not told either.. learned by chance. Sorry to hear this. Let us know how it goes with the GP. Take care
Thanks CRJ. I will update about my GP appointment, hopefully next week.
Iāve had vasculitis since I was 18 and took ibuprofen regularly thatās affected my kidneys, and been diagnosed with CKD Iāve been under the nephrologist since 2023.. and only found out about this community a few days ago!
I have been drinking around 2/3 litres of water daily, and have reduced salt intake, but cannot control my high blood pressure and itās affecting my day to day life and mental health
Sorry misread the message Best wishes B
Im sorry to hear this
Hi everyone Iām new to the group, and Iām here to ask/answer any questions related to CKD and maybe for some support with people that understand this disease.i have a rare auto immune disease called anti-gbm ( good pastures) which instantly killed my kidneys so Iāve been at stage 5 for almost 5 years now,dialysing along the way and I now do home heamo dialysis.