# \#rare-kidney-disease

**URL:** https://kidneycommunity.kidneyresearchuk.org/tag/rare-kidney-disease/9.md

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## [Living with or supporting someone with a rare kidney disease? Let's share experiences](https://kidneycommunity.kidneyresearchuk.org/t/living-with-or-supporting-someone-with-a-rare-kidney-disease-lets-share-experiences/86)

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**Author:** [@Kidney\_admin](https://kidneycommunity.kidneyresearchuk.org/u/Kidney_admin)\
**Replies:** 0\
**Last updated:** [4 February 2026 10:47 UTC](https://kidneycommunity.kidneyresearchuk.org/t/living-with-or-supporting-someone-with-a-rare-kidney-disease-lets-share-experiences/86 "2026-02-04T10:47:44Z")

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This community brings together people who share similar experiences. Living with a rare kidney disease doesn’t mean you’re alone. If you’re a patient, what do you wish others understood better about your rare kidney dise…