How do you balance work or studies with your kidney appointments and treatments?
I’ve been lucky with my work, the company I work for are pretty flexible and although I have taken days as annual leave for some appointments or operations, if it’s a simple consultant or blood test, I can plan my work day around it.
The past few months, I’ve changed my start time (as I work from home and head out for half the day, then write up reports in the afternoon) that allows me to go for a walk first thing before I head out, and that helps me mentally for the day
I am lucky in that respect, and whilst it has taken months and a lot of chats and some complaints, they have listened and are making reasonable adjustments within my workload as I get worse
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Hello I am new to this app but I am finding it very helpful and very informative to find out about what other people are experiencing, I lost one of my kidneys due to sepsis and my remaining kidney is now at 76 which is way down on its normal level I also have four large kidney stones which have damaged it but I am due to get them dealt with in two weeks time, but and there is always a But I now have very severe anaemia so I am now at the point where I can hardly keep awake and my energy levels are very low because I am just so tired, I lost my wife a few years ago so I am now completely on my own and finding myself feeling very stressed out every single day and not sleeping very well, can anyone please advise me how I can cope with all of this stress going on, I should add that I am a wheelchair user which is also not very helpful.
Robert
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Hello I found out I’d had CKD for 10 years when I was being prescribed medication for type 2 diabetes and nurse said oh you can’t have Metformin because you have CKD I said pardon what is that ? Two years later iv been really poorly for 6 weeks got rushed to hospital because I couldn’t stand without going dizzy and severe exhaustion in hospital they told me my GFR had gone from 54 to 31 and have protein in my urine I was given fluid sent home 2 days later and I still feel same with nausea and exhaustion is this normal I’m waiting for repeat bloods