Hi, it looks like stage 3, 3a or 3b, is becoming announced more and more.
As above on previous members, it’s a long way from any major worries yet, and whilst for you it is an unknown and a concern, finding what is causing the deterioration will be the main focus on top of monitoring your eGFR numbers.
I’d imagine being in the 40-60’s range is something the doctors will review regularly, and if it remains there, it’s perfectly manageable, just watch for high salt or potassium foods, and try to keep a regular BP, get that checked often as being high puts pressure on your kidneys.
It can be worrying when you’re first diagnosed but keep a focus on the positive that you’ve had it noticed early and it can be managed with diet or medication, depending on what’s causing it
Hi as per previous members, it’s sound advice from your GP, and it’s positive that it’s been found and is being monitored.
If it continues to drop regularly and steadily, then they will look to see what is causing it via a consultant I’m sure, but at stage 3, it sounds scary, but you’re at the early stages realistically, and you may well stay there for many years yet
Iam have INFECTION IN MY left KIDNEYS and they going to remove it can’t be saved because of cancer in it I’m 72 years old when I have my daughter 42 yr ago i had surger because I had cancer than now again at the age of 72 old
If you’re only stage 3 and in your 70’s, it’s quite possible that it’s just a natural progression of kidney function.
But that doesn’t take away your concern, however it sounds like the docs are monitoring you well enough and hopefully it’s stable enough for coming years for you
I don’t think at that point yet, if it’s stable, they will put you on any medication or carry out any or many tests right now.
If you feel you need to demand a GP appointment and chat, it may put your mind at rest, but it would seem you are a reasonable way from any concerns just yet
Hi. I’m Val. I will be 81 in 3 weeks and was recently diagnosed with Stage 5 CKD. I’m reasonably philosophical about this, I’ve had a good life. I have decided not to go for dialysis which would only prolong things rather than curing me. The one thing which annoys me is how feeble I now am - I’ve always been very independent and capable.
Hi. My name is Judi and I am here to support my 75 year old husband who has just found out that he has level 3 CKD. I say ‘found out’ because it suddenly appeared on his NHS app under conditions but no medical professionals have spoken to him and we are struggling to get an appt with a doctor. It says on his notes - to be discussed - but we keep being told that there are no appointments available. Therefore, I am searching around for advicr as to what he should and shouldn’t eat and how best i can support him. I’m happy to eat the same as him but am not sure where to get the best advice and perhaps some recipes. I’m glad to have joined the group so that we don’t feel quite so alone on this journey.
I’m Alan an 80 year old carrier of Prostate cancer for over 15 years. Blood test min 2 x year. (PSA) of 2.4 which is good. Was a lot higher at the beginning but it’s come down with treatment.
I mention this because it’s linked to CKD in as much as, in my case I was diagnosed with CKD 3B after a bout of Sepsis in 2021, which damaged some joints and my kidneys from the infected blood
A month ago my prostate squeezed my urine tube, which passes through the centre of it, and I ended up with urine retention (couldn’t pee)
Hers the link to CKD.
A full bladder has no where to go except upwards back to the kidneys which had to deal with the toxins in my pee all over again. My CKD went down towards CKD4 with a eGFR of 32 from my usual eGFR of 49. I ended up in a&e and left with a Supra pubic catheter fitted.
Bit of a shock but thinking it through I’m happy with this as I don’t have urine retention anymore and my eGFR has gone back up to 42.
With regard to diet, pay more attention to what’s in your food and avoid salt, protein, red meat, dairy products, processed food, bacon plus a load of others you love. Swap to a plant based diet if you can with berries. Apples are good and so are blueberries but bananas are a no go.
Ask the GP what the routine is for monitoring your CKD and will the surgery contact you when bloods (u & e) are due and can he share the lab results with you
The results are in indication of your CKD stage and the ability of the kidneys to filter your blood and remove the toxins plus other things you want to get rid of. These toxins end up in your bladder as urine which you get rid of when you pee
Keep an eye on your bladder and empty it regularly. Don’t let it back up towards your kidneys. If you want a pee then go. Don’t wait till your favourite programme has finished or the adverts are on.
Above all keep smiling there are people with worse problems than you
Hi I’m Leanne I’m 46 from Suffolk. I have kidney disease stage 4,aneamia, fluid retention and type 1 diabetes. I’m so breathless all the time and need advice gps etc can’t seem to find out why
Hi, fluid retention and general breathlessness is common with stage 4-5 from what I have found, as your blood isn’t being oxygenated as much as it should due to the poor kidney function.
With diabetes it’s possibly made worse, so perhaps some medication (there’s a good one now for BP, diabetes) will help you in this, but it can be trial and error with the GP will they search for a suitable balance of meds
Hi there my name is Paul and I have iga nephropathy and I was diagnosed in 2013 I did two years of dialysis back then and did ten months on nx stage at home six days a week I got my first transplant in 2015 and it lasted ten years, I have now been on dialysis for 16 months and 14 months at home now it’s hard work who else in the UK is doing home heamo with the fresenius machine??
Hi I am Valerie, 3 yrs ago I was diagnosed with a failing heart and given a pacemaker, everything was going ok until I was told I now have diabetes 2 I took note og my diet and tested my blood regularly and no problems ungil the next shock last year I was diagnosed with CKD3. I had.a problem trying to adjust the diabetic diet with the kidney one so I swa a dietitian and she recommended the kidney foundation cook books which are marvelous and all was fine I was keeping fit and cheerful doing my garden and eating heaithily. Sorfy this is so long bjy 3 weeks ago I had a fall.and had some scans at the hospital. It has now been discovered I have lung cancer. I am at my wits end. I just want to cry, i am so down and sad also angry why me I have never even smoked. What can I do I feel there is not much point going on. Sorry to burden you and thanks for reading
Good morning Sophie, I have just come across your post from February. I have had Hydronephrosis all my live (I am 65 years old) and rarely come across anyone with the same condition. I lost my left kidney at the age of 12 after having my left ureter re-implanted into the bladder 2 times. I have now had the right ureter re-implanted 4 times. My solitary kidney is larger than normal and lower function but has kept me away from dialysis for 53 years. I hope it helps finding someone who you can talk to as it does for me.
Thank you for sharing how you’re feeling with the community. It sounds like you’re going through an incredibly difficult time, and we’re really glad you reached out.
We wanted to check in because we’re concerned about your wellbeing. Please know that you don’t have to carry these feelings on your own and there are people available who can support you right now.
If you feel that you may be at immediate risk of harm, please call 999 straight away.
If you’re safe but need someone to talk to, you can contact:
Samaritans on 116 123 (available 24 hours a day)
NHS 111 online or by calling 111 and selecting the mental health option
Shout by texting SHOUT to 85258 for free, confidential support by text
Reaching out for support is a positive step and we would encourage you to do so today. We’re here to listen and support you as a community, but speaking with a trained professional can help ensure you get the care and support you deserve.
Thank you for taking the time to share your story with us. Welcome to Kidney Community .
You’ve certainly faced a number of health challenges over the years! It’s encouraging to hear that your kidney function has improved following treatment for your urine retention.
We really appreciate you sharing so many practical tips and lessons from your own experience. Your reminders about understanding your blood test results, keeping up with monitoring, paying attention to diet and not ignoring changes in bladder habits are all really helpful. I’m sure many Kidney Community members will find your insights valuable!
Thank you again for sharing and for your positive outlook
Just read your post and I’m sorry for what you are going through. I’m 80 with multiple issues which can’t be fixed. Some of which I’ve had for a very long time
Instead of feeling down in the dumps, have a good look at the conditions you have been diagnosed with.
Ask yourself ‘ is there anything I can do - to improve my situation’. After speaking to your doctors you will find that there is, such as diet, walking to loose weight. ‘Tai chi’ is nice and easy, plus many other little things - if you can do them
Let the consultants and GPs worry about the tablets and tests as you have little control over them. If they give you tablets ask them what there for and are there any side issue’s you should know about. Also ask if there is any link between your conditions and is any one affecting another.
Helping yourself to stay stable gives you some sense of control over what’s going on
Think about your situation in general and ask yourself. ‘Is there anything I can do to improve my overall outcome’?
If the answers No, then worrying about the situation hasn’t changed it at all Just making you worry more
My philosophy is:- I you can’t do anything about it then there’s not much point in worrying about it. You have to play the cards you’ve been dealt
Hope your situation gets under control and you can have some input into it
Kind regards
Hi everyone, I have CKD5 and been told I have a heart murmur currently being investigated. I will be having dialysis at some point in the near future and would welcome your opinion on whatever method of dialysis you are having and why you chose it. I am 75, not young but fairly fit. Thanks!
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