Hi, Steve here, I’m a recently transplanted 73 year old. I’m into my second year with a kidney from a 69 year old lady to whom I am immensely grateful. The last year has been fairly straightforward my only hiccup is a low white blood cell count
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Hi everyone
I’m Karen, I’m a live donor.
My brother got my left kidney 6 weeks ago.
I have been raising money and doing bridge walks for a few years now x
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Hello, I’m Natalie. I was diagnosed with CKD in February 2024. I have CKD Stage 3b. I’m currently going through cycles of itchy skin and peeing through the night.
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My Name is Tawanda 45 years Male, originally from Zimbabwe, on dialysis for 5 years and on transplant waiting list. Happy to join this amazing group
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Hi all I am Sharon
70 year old scouser living in Scotland with stage 3b
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Hi im New Here
I was diagnosed with stage 2 7months ago getting little help from my GP
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Hi all.
I’m Liam. 45 from north Notts. Diagnosed in 2008 with Iga Nephropathy. Current Egfr 22. I am taking part in a clinical trial at Doncaster Royal Infirmary. Although I have a great support network around me, sometimes I still need some re assurance and motivation to help me get through things.
I look forward to hearing from anyone in a similar situation and I’m always here for a chat should anyone need it.
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Hi I’m Coraine and I’m in Sheffield. I’m stage 4 CKD but holding on at that ….. I have multiple other health issues but im trying not to be greedy….lol
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Hello, My name is JohnB and live near Peterborough UK. I am 73 and already had gout and COPD, I had a radical nephrectomy in May 2023 with a left kidney cancer of 11 cm and 1.3 kilo’s. Since then hypothyroidism, pancreatitus, pancreatic exocrine insufficiency, numerous bile stents, gall bladder removal and then a couple of months ago, my GP put on my records that I have CKD stage 3b. MY eGFR is around 40 and has hovered around this since May 2023. I have asked for a referral to a renal dietitian and am waiting, not sure what to eat / drink etc.
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We’ve had a proper wee flurry of new members to the forum this evening! Welcome, everyone! I’m pretty sure you’ll all be able to find answers/support/friendly chat here. 
Maureen
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I am 87 years old and was diagnosed Stage4 about three years ago. My specialist has just released me, she told me that due to my age, I should manage a few more years before wanting dialysis. She discharged me claiming that because of my age, there was nothing much they could do, great.
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I’m Stephen, 73. CKD diagnosis July ‘23. MRI scan for super-enlarged prostate showed bladder not emptying and backflow had damaged kidneys. Admitted thru A&E with an eGFR of 7. No-one explained what that meant but I was let out when it recovered to 27. Hovers in low thirties but recently dipped to 26 and up again. Prostate issues were sorted out eventually after a long period with a catheter and with laser treatment (which revealed low-grade cancer) and I now have the loo routines of a young man again, so some things work out well! Beware some side effects of taking Finasteride for enlarged prostate (Gynecomastia). Take Allopurinol to combat gout and have 8-weekly blood tests to monitor for any side effects on my kidneys. Keep smiling.
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Hi I’m June , I am 76 and have CKD stage 3. I only have one kidney. I only found out on my NHS app and haven’t seen anyone x I knew I only had one kidney whilst having a scan.
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Hi, I’m Joanne and I’m 5 months post live donor transplant that has unfortunately been through many complications. I’ve joined this community to ask questions where needed and seek support from others who may be going through similar experiences to myself. Thankfully, things are looking a little brighter right now but my function isn’t where is should have ended up and I do feel a sense of upset and anger around that. Be good to share my experience with others too. A kidney transplant isn’t always as straightforward as it’s sometimes made out to be.
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I hope you’re getting help by now with UTIs? They seem common. I was fitted with a catheter for 18 months before prostate surgery and with CKD already diagnosed, stage 3b. I only got one UTI, put down to catheter-changing issues the one time a District Nurse didn’t change it! Yet my wife suffered much like you but we persisted asking for help and the consultant recommended to the gp to prescribe a daily low dose of Nitrofurantoin with me as recognised Carer to have sufficient tablets to quadruple the dose if the tell-tale signs returned and before we could get to a gp. So there are work arounds out there. I find writing to the gp(s), describing a condition and seeking advice works well but you do have to be persistent. Good luck.
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Hi I’m Gayle my husband was diagnosed with hereditary pkd when he was in his early twenties but we didn’t think it would affect our life’s at this age and carried on with our lives, his family have alot of family members with the condition including his father, aunt , 2 cousins (one who has had a transplant) and a sister , we are in our 40s now and have 3 kids over the past 5 years has been tough with doctors appointments, home dialysis , his health deteriorating, and eventually hospital dialysis and wishing every night we would get the phonecall for a kidney and a new start, we got our wish 
and davids friend was a live donor 
and he is a year next month after his transplant ,ive came on here to offer advice and tell everyone keep positive , we still have a journey to go as our kids may have the condition so any advice on hereditary pkd would be good too , thanks for listening , hope everyone is well xxx
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Hi I’ve had Ckd for some years but not had any help regarding the disease or diet.
Can you give me some advise please
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Hello, last week I was told I had kidney disease stage 3 and I had been listed for another blood and urine test in a year. So I’m now wondering what happens next. Should I be doing something, should I be reading something, and then I found this site. This is all new, but it can’t be that bad as they are not doing anything for a year!
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Hi thanks for allowing me to join. I was diagnosed with Mesangial Proliferative Glomerulonephritis in 1976. Only found following testing my urine when working as a nurse. I am at stage2 CKD.
Hi my name is Lorraine. I am carer for my husband who has stage 5 CKD. He started on dialysis 12 months ago, having deteriorated very quickly and is currently live on the transplant list. I had hoped to be a donor for him. I turned out to be a great match but during screening they discovered I have some kidney problems too, which was a shock & devastating for us both. I am 63 & my husband is 67.
He started home dialysis in October 2025, which I do for him. This has had its ups & downs , at times I am finding it difficult to cope and for the first time in my life I am suffering with anxiety.
I am hoping there maybe someone in the group who knows how I am feeling.
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